Results 1 to 6 of 6

Thread: MND Documentary

  1. #1
    Forum Member G60dubber's Avatar
    Join Date
    Jan 2011
    Location
    Lincoln, England
    Posts
    467

    MND Documentary

    Had a rather surreal day today!.

    To cut a long story short, I was asked last week by the Lincs MND chairman if I wanted to help in the production of a short film / documentary to help raise awareness of MND. A local film company got community grant funding to produce this and I felt it was an opportunity to help in raising the profile and awareness of the condition. I was even more keen as I am the youngest person (as far as I can ascertain) in my region so wanted to increase understanding that it doesn't just affect the older generation.

    Quite a tough couple of hours having to talk about impacts on self and family, how it restricts, positives (yes they are there) & negatives etc. Was rather pensive beforehand but surprisingly felt good afterwards.

    They're interviewing another couple of people but it should be ready for publishing in a week or two at the most..... yikes!!
    I'll let you know when it's out so you can have a look. It'd be really interested in hearing any feedback and whether anyone has engaged in something similar to this.
    Life without love is like a broken pencil..... Pointless.

    http://mndestroyer.wordpress.com/

  2. #2
    Forum Member
    Join Date
    Dec 2010
    Location
    West Midlands
    Posts
    135
    That's great news Adie, keep us posted. I think it will be a great way of spreading awareness, and indeed as you say, letting people know that it doesn't just affect older people.

    A Channel 4 documentary featuring a man living with MND recently won an award, here's a link to the story: http://www.mndassociation.org/news_a...cumentary.html

    Here's where you can see the documentary. But, of course, its very emotional and sometimes hard going as it deals with the genuine emotions of a man living with MND.

    http://www.channel4.com/programmes/i...good-night/4od

  3. #3
    Forum Member G60dubber's Avatar
    Join Date
    Jan 2011
    Location
    Lincoln, England
    Posts
    467
    Just watched the program that Jenni linked to, they dealt with an emotive issue well and got a good balance of the feelings people have towards life and their respective conditions. Difficult to watch at times but pleased I did. Thanks Jenni.
    Life without love is like a broken pencil..... Pointless.

    http://mndestroyer.wordpress.com/

  4. #4
    Forum Member
    Join Date
    Jan 2011
    Location
    Northamptonshire
    Posts
    1,065
    Four media studies students at the local uni are producing a short 10 minute documentary on the role of MNDA VAs (or is it AVs?) . They ha ve filmed me and my husband and the volunteer visitor. As my speech is almost unintelligable, I am not exactly looking forward to seeing the result. However, if it used to raise awareness and helps the students gain their qualification, I am happy to have been involved.

  5. #5
    Forum Member Chris's Avatar
    Join Date
    Dec 2010
    Location
    St Helens
    Posts
    494
    Thats great Adie, like you say i think its good that someone younger than the average is involved.
    Thanks for the link Jenni, a very moving bit of film.
    YNWA............Trying to stay positive..........

    Website http://chris-versus-mnd.weebly.com/

  6. #6
    Forum Member G60dubber's Avatar
    Join Date
    Jan 2011
    Location
    Lincoln, England
    Posts
    467
    I was nervous and I don't have bulbar problems, I have a great respect for you Miranda in having the mettle to do the interview. I cannot comprehend how difficult it was but it is a message that people sadly need to see to gain some semblance of understanding. Do you know what they plan to do with it? If you are prepared to share it I'm sure many would want to watch it.
    Life without love is like a broken pencil..... Pointless.

    http://mndestroyer.wordpress.com/

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •