Iβve had my appointment at the MND Clinic and have had the official diagnosis, it was expected as Iβd already seen it on the MYGP app.
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Forum Announcements & Help
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Posts: 998
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super pubic catheter help
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MND Association News
Developments and news updates on the work of the MND Association.
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Posts: 201
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The MND Connect Helpline is changing
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 650
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Hello there
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
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Challenge complete π
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| Motor Neurone Disease General Discussion | ||||||
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Unconfirmed Diagnosis
A space for those who haven't yet been formally diagnosed with motor neurone disease, but are looking for peer to peer support.
Topics: 30
Posts: 497
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Final Diagnosis
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,900
Posts: 29,258
Last Post:
Advice applying for PIP.
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 342
Posts: 3,937
Last Post:
So what happens now?
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 237
Posts: 3,774
Last Post:
Needing some advice
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Treatments & medication
Discussion on all treatments and medications that you've experienced and have been prescribed by professionals.
Topics: 174
Posts: 2,468
Last Post:
SMART trial
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 257
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Interleukin
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 69
Posts: 914
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Anniversary
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 188
Posts: 2,302
Last Post:
Travelling on a plane
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 301
Posts: 3,134
Last Post:
Voice banking advice.
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 150
Posts: 1,625
Last Post:
Accessing pensions early
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 598
Posts: 28,617
Last Post:
Wordle (for any quizzers)
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There are currently 963 users online. 17 members and 946 guests.
Most users ever online was 82,169 at 02:59 on 13 March 2023.
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Yesterday, 18:18
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Hello, my name is Liz and I was diagnosed with bulbar onset mnd in November 2023.
I have been lurking on the forum for a few months and reading...Yesterday, 14:06 -
What's people's experience in getting this certificate?
How do I do it?
What will it get me.?
Can I use that to get an early...Yesterday, 11:28