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Thread: Help with managing anxiety and panic attacks in MND.....

  1. #1
    Lola
    Guest

    Help with managing anxiety and panic attacks in MND.....

    Hi everyone,

    I'm just writing on behalf of my Dad. He has been diagnosed with MND and since this diagnosis he has suffered with debilitating anxiety. He cant do much without become extremely anxious - it's very upsetting to see. He is worried about falling (he is still mobile but had 2 falls this year). He has had symptoms for 7 years and they have remained pretty slow however over the past 6 months, there seems to have been massive changes for Dad i.e. now he doesnt want to be left alone, he doesnt feel safe walking on his own, he doesnt want to go out (accompanied).

    He doesnt believe in himself at all and i so want to help He had been prescribed an antidepressant 1 month ago and has been given a Bipap machine 2-3 weeks ago. Interesting things seem to have got a lot worse since he startd the Bipap machine and
    i'm not sure whether this is a coincidence....

    Is anxiety and panic attacks common in MND? I'd say I'm more worried about this than anything because it's affecting his view of life....

    Thank you for listening
    Lola

  2. #2
    pete
    Guest
    Hi Lola,


    Know how your dad feels, For me like many others Knowing your vulnerable is a confidence bashing experience to say the least, For me Having started with a walking stick then upgraded to a Rollator, that in itself takes some courage, but worth the effort, once you get used to going out with it it has made me feel a lot easier , maybe worth a try to see if this restores his confidence, hope so !

    Regards
    Pete

  3. #3
    Rory
    Guest
    Hi Lola
    I too suffered some anxiety attacks - my doctor said it was common as the body and mind is going through so much as the illness progresses. I was given a minimal dose of medicine to take and it has worked for me. I only really get 'anxious' if that is the word when I feel breathless as with two recent chest infections. The nippy in my case has helped the sleep pattern - stick with it - it does take time getting used to but it is worth it in my opinion and keeps the lungs in extended use.
    Hope this helps
    Rory

  4. #4
    Shown
    Guest
    Hey Rory well said and i am agreed with you. Its a natural thing that our body and mind feels. I like your suggestion that you gave us. Thanks for this. I am sure it will work.

  5. #5
    roy
    Guest
    Hi Rory,

    Ive discovered the ID of shown, she is the beautiful daufgter of the great leader wonghunglo.

  6. #6
    Lola
    Guest
    Rory - do you mind me asking what medication has been helpful for you. Dad doesnt feel much benefit from the 10mg of citalopram prescibed by his GP....
    Lola

  7. #7
    Lola
    Guest
    Great - how do i look into getting dad a Rollator?

    Lola

  8. #8
    Forum Member
    Join Date
    Jan 2011
    Posts
    283
    Hi Lola,

    The Citalopram for anxiety has a kind of cumulative effect and the benefit will only really start to be felt after your Dad's been on it for six to eight weeks. It's 'one a day' and can easily be forgotten if your Dad does start to feel better, so keep an eye on that and don't let him stop taking them.

    Also he is on the lowest dosage. Your GP should be checking his progress every four weeks at least, and will have the potential to prescribe a higher dosage once your Dad's initial response to the drug has been assessed.

    As far as the rollator is concerned, make enquiries with your Dad's Occupational Therapist or hospital Care team, they should be able to help there. Otherwise speak to MND Connect (link at the top of this page) who will be able to put you intouch with the MND facilities in your area. Your regional care development adviser (RCDA) should be able to help out with info if all else fails.

    Look here for more details.

    Best wishes for the New Year,

    Mike.

  9. #9
    Rory
    Guest
    Lola
    I am on ten drops a day of Citalopram - which I feel is a minimum dose. We had to come home about a year ago from our big trip round the world due to my 'anxiety' , feeling uncomfortable / restless. Amazingly the drug seemed to work quite quickly for me and I have had little trouble since. I did not mention the drug earlier as each GP wil prescribe what they feel best for each patient.
    I do hope you get the right treatment as it made so much difference to me and we were able to go to Barcelona, Gibraltar, Lake Garda, Lanzarote and Cannes later last year without any trouble.
    Best wishes
    Rory

  10. #10
    Joydy
    Guest

    Anxiety attacks

    Quote Originally Posted by Rory View Post
    Hi Lola
    I too suffered some anxiety attacks - my doctor said it was common as the body and mind is going through so much as the illness progresses. I was given a minimal dose of medicine to take and it has worked for me. I only really get 'anxious' if that is the word when I feel breathless as with two recent chest infections. The nippy in my case has helped the sleep pattern - stick with it - it does take time getting used to but it is worth it in my opinion and keeps the lungs in extended use.
    Hope this helps
    Rory
    Hi Rory

    Would you be kind enough to tell me about the nippy. I think it is a machine to aid breathing at night, but I'm not sure. My husband suffers with anxiety from time to time and we have an appointment at a sleep unit at the end of the month to check on his breathing at night. Many thanks.

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