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Thread: Help with managing anxiety and panic attacks in MND.....

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    Help with managing anxiety and panic attacks in MND.....

    Hi everyone,

    I'm just writing on behalf of my Dad. He has been diagnosed with MND and since this diagnosis he has suffered with debilitating anxiety. He cant do much without become extremely anxious - it's very upsetting to see. He is worried about falling (he is still mobile but had 2 falls this year). He has had symptoms for 7 years and they have remained pretty slow however over the past 6 months, there seems to have been massive changes for Dad i.e. now he doesnt want to be left alone, he doesnt feel safe walking on his own, he doesnt want to go out (accompanied).

    He doesnt believe in himself at all and i so want to help He had been prescribed an antidepressant 1 month ago and has been given a Bipap machine 2-3 weeks ago. Interesting things seem to have got a lot worse since he startd the Bipap machine and
    i'm not sure whether this is a coincidence....

    Is anxiety and panic attacks common in MND? I'd say I'm more worried about this than anything because it's affecting his view of life....

    Thank you for listening
    Lola

  2. #2
    Forum Member pete's Avatar
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    Hi Lola,


    Know how your dad feels, For me like many others Knowing your vulnerable is a confidence bashing experience to say the least, For me Having started with a walking stick then upgraded to a Rollator, that in itself takes some courage, but worth the effort, once you get used to going out with it it has made me feel a lot easier , maybe worth a try to see if this restores his confidence, hope so !

    Regards
    Pete
    All I need is a miracle

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    Great - how do i look into getting dad a Rollator?

    Lola

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    Forum Member Rory's Avatar
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    Hi Lola
    I too suffered some anxiety attacks - my doctor said it was common as the body and mind is going through so much as the illness progresses. I was given a minimal dose of medicine to take and it has worked for me. I only really get 'anxious' if that is the word when I feel breathless as with two recent chest infections. The nippy in my case has helped the sleep pattern - stick with it - it does take time getting used to but it is worth it in my opinion and keeps the lungs in extended use.
    Hope this helps
    Rory

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    Rory - do you mind me asking what medication has been helpful for you. Dad doesnt feel much benefit from the 10mg of citalopram prescibed by his GP....
    Lola

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    Anxiety attacks

    Quote Originally Posted by Rory View Post
    Hi Lola
    I too suffered some anxiety attacks - my doctor said it was common as the body and mind is going through so much as the illness progresses. I was given a minimal dose of medicine to take and it has worked for me. I only really get 'anxious' if that is the word when I feel breathless as with two recent chest infections. The nippy in my case has helped the sleep pattern - stick with it - it does take time getting used to but it is worth it in my opinion and keeps the lungs in extended use.
    Hope this helps
    Rory
    Hi Rory

    Would you be kind enough to tell me about the nippy. I think it is a machine to aid breathing at night, but I'm not sure. My husband suffers with anxiety from time to time and we have an appointment at a sleep unit at the end of the month to check on his breathing at night. Many thanks.

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    Forum Member Lolly's Avatar
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    Sit upright with your arms over the back of a chair. Breathe in slowly counting to 7 as you do. Hold it for 7 seconds (or as long as you're able). Breathe out slowly counting to 7 as you do. Pause. Repeat process for 15 minutes.

    You will start to feel better immediately but in 2 hours time, you will feel much much better.
    This exercise repeated twice a day helps prevent panic attacks too!

    Panic attacks are caused by hyperventilation, ie., breathing too shallowly for too long a time - over-breathing, which elevates CO2 levels. Slowing your breathing down is the goal.

    If you are a carer sit in front of your loved one/charge and hold their hands while you do this together and keep very calm and upbeat, as if this is normal. Too much seriousness on your face will trigger more anxiety.

    Hth's
    Last edited by Lolly; 21st January 2013 at 02:14.

  8. #8
    Forum Member Rory's Avatar
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    Hi Lola
    I was initially advised to have the Ventilator to aid my sleep as I was becoming breathless and was not getting enough oxygen inthe body and also not getting rid of carbon dioxide.. The ' Nippy 3 ' ventilator cured that ( I think most people say it does take a bit of getting used to - as it was a little invasive to me) . The carbon dioxide if not released can cause headaches in the morning. Also the ventilator pushes air in to the lungs and keeps them fully utilised. My breathing has been stable for over a year apart from when I do any any form of exercise as I am getting weaker.
    If there is a problem with the Nippy , it is that is dries out the mouth - the other end of the scale where excess saliva and gunge is produced during the day! To help this the doctor / hospital supplied us with a humidifier that attaches to the Nippy so that moist air passes through - it helps a lot.
    The appointment with the sleep unit should advise on the oxygen levels and general breathing issues and strength - they will identify any adverse trends for you. As I spend a lot of time downstairs we have been given another machine - it negates the need for my wife to take it upstairs each evening. I use it now quite a lot during the day to recharge my body. I have been told you can't overuse it but I can cope with up to 10 hours without using it some days if I just relax.
    I hope this helps - if you require any more info please let me know
    I hope your Dad responds to the drugs and is a little more relaxed.
    All the nest and take care
    Rory
    X
    Last edited by Rory; 19th January 2013 at 18:08. Reason: Distracted by footy results !

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    Hey Rory well said and i am agreed with you. Its a natural thing that our body and mind feels. I like your suggestion that you gave us. Thanks for this. I am sure it will work.

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    Forum Member roy's Avatar
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    Hi Rory,

    Ive discovered the ID of shown, she is the beautiful daufgter of the great leader wonghunglo.

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