Hello everyone, I hope you can help. My mum has MND, diagnosed last August. She had a PEG fitted in February as she is no longer able to eat or drink. She is fed 200mls of formula five times a day but ever since she got home from the hospital has suffered terribly with diarrhoea. Not easy when your mobility is restricted and you can't rush to the loo.
She is currently fed manually with a syringe into the PEG. Has anyone had experience of the feeding overnight via the machine. She has tried a variety of different food formulas with no success and has only put on about a pound since the PEG was fitted. We are desperate to sort this out and the dietician seems to operate on a very slow schedule and probably doesn't know much about MND. Feeling very frustrated, Bess