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Thread: PEG or no PEG

  1. #41
    Forum Member Ellie's Avatar
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    Kiran,
    If Adie is using NIV, technically a feeding tube can be placed in a RIG/PIG procedure. Some specialists will use the PEG procedure, but most shy away from doing it on folk with low FVC. There is a tube – MIC*G - which can be done just with a tummy full of air, not requiring an endoscope or, if these are deemed too risky, he can get a Nasal Gastric tube. NG tubes are usually for short term use but have been used successfully in longer term situations.
    All risks v benefits need to be discussed with his team.

    Best wishes to you both,
    Ellie.

  2. #42
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    Mum definitely had an NG tube for several months. She elected not to have most interventions but was persuaded by nursing staff to try the NG and she managed successfully with it.

  3. #43
    Forum Member Terry's Avatar
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    Hi Ellie;

    You better tell us what MIC*G stands for and FVC.

    Many hospitals will only do a PEG and RIG so the others may not be available locally.

    Thanks, love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  4. #44
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    Hi

    Thank you all for your comments. We are not with Sheffield anymore and haven't been for about 3 years. The journey was too much for Adie and there was nothing new to be told apart form he was getting weaker!

    Will explore options with gastroenterologist and see where we go from here, but at least we now know about PEGS, POGS AND PIGS lol!

    Kiran

    xx

  5. #45
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    Did you have the PEG fitted? How did it go? My husband is now in the same position as you when you wrote this post

  6. #46
    Forum Member Terry's Avatar
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    Hi MEJ,

    Kiran has not posted for a while, what is your husband's dilemma and situation.

    Love Terry

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