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Thread: Determined to spread awareness whilst I still can! Step 1 :)

  1. #1
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    Determined to spread awareness whilst I still can! Step 1 :)


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  3. #3
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    If this is step one can hardly wait for step two ! May courage and determination remain with you. Good luck with your list.

    freda

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    Forum Member Terry's Avatar
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    Great stuff Ailsa.

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    Go girl! Good luck with your bucket list.

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    Stay strong, hopeful, and positive Ailsa. Hoping all your dreams come true!!

    CCxx
    .

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    Well done Ailsa for raising the profile, I have just read the Daily Mail online. My husband who has MND is also a Man United supporter but thankfully kissing Van Persie is not on his bucket list!
    Very best wishes
    Angela

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    Forum Member roy's Avatar
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    Hi Alisa,

    Just say welcome and sorry you found your way here, like everyone wish you the very best in your quest
    and keep going with that positive outlook,better than any drugs prescribed.

    Best wishes to you,mum and daughter.

    Roy
    Good as it gets :-)

  9. #9
    Forum Member Northern star's Avatar
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    Well done you .... It's important to get our stories out ... Well done with you wish list too ... A number if us are organising an awareness evening and showing 'I an Breathing' film it's on Saturday 14th September at 7pm at St Clements Church Hall , 6 ,Edge Lane , Chorlton
    Would be good to see you but the film is heavy ... I have put it on my blog northernstar1.wordpress.coom
    Continue to spread the word ...

  10. #10
    Forum Member Frank's Avatar
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    Hi Alisa.
    I really hope you don't take this the wrong way, as I really think the publicity that you have raised in the media is great.
    but in your previous thread you said that you was still waiting for the lumbar and EMG tests to be done.
    Have you had the results back yet?
    I'm only saying this out of concern that you don't jump the gun.

    This probably sounds awful, but you don't really know what you have until the test results are back.
    You may want to wait to do your bucket list until you have your results.
    People can be very unforgiving if they feel misled, especially when money is involved.
    I hope you take this as well meaning; as I have struggled to get the nuance of the wording right.
    I certainly don't want to cause any upset to you or your family.
    xxxx Frank
    'An eye for an eye', leaves the whole world blind.

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