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Thread: excessive saliva control

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  1. #1
    caroline
    Guest

    excessive saliva control

    Hi, this is my first time posting on this forum! My Mum was diagnosed with PBP last July and is now at the stage where she has no speech and swallowing is becoming a big problem, we are currently trying to encourage her to agree to a PEG as she is loosing weight but she is refusing (but that is a different matter). The other big problem we are having is the volume of syliva she is producing and obvioulsy not being able to swallow it, we have printed the information sheet from the MNDA and are trying to work through the options, so far we have tried the natural i.e. fruit juices and the travel sickness patches, neither have worked. We are about to try Kwells (also for travel sickness) and see how that works, but does anyone have any methods that they tried that worked successfully? The GP doesn't seem to be much help here and is tending to write prescriptions for the products that we are asking for rather than suggesting new ones. Any help or suggestions would be gratefully received.

    Thanks
    Caroline

  2. #2
    Forum Member
    Join Date
    Jan 2011
    Location
    Sherborne, Dorset
    Posts
    8
    Buscopan....My Dad was diagnosed last July but sadly passed away on the 18th March.
    In the hospice where he spent his last day they used Buscopan for excessive saliva.
    Check up on this please before giving it to your mum, wouldn't want anything to go wrong!
    Hope that helps x x x

  3. #3
    caroline
    Guest
    Thank you Carly and so sorry to hear about your Dad. We will check it with the GP and hopefully it may do the trick.

  4. #4
    Forum Member
    Join Date
    Dec 2010
    Location
    Salford
    Posts
    1,255
    Hi Caroline,

    Buscopan is a muscle relaxant and may adversely affect other weak muscles.

    Best wishes

    Graham

  5. #5
    Barbara
    Guest
    Hi Caroline, my mum has been struggling with exessive saliva for 12 months. the best thing your gp can prescribe is glycoporronium. There is also a special non foaming toothpaste which can be prescribed but i cant remember the name of it. i think i found it on the main mnd sight.

    best wishes

    barbara

  6. #6
    Forum Member
    Join Date
    Jan 2011
    Location
    Devon
    Posts
    380
    I think i read somewhere that it is colgate non-foaming toothpaste - prescribed

    having a few boxes of tissues around can help with excess saliva
    all the best
    Lucy

  7. #7
    Traceygibbo
    Guest
    my husband had a little patch i think it was called a hyocin (spelling sorry ) you can also get it in medicine form also my husband had botox injections injected into his saliva glands via the hospital unfortunatly my husband died on 23rd april .. but this did help him slightly it depends on the form of m.n.d ..as for the toothpaste you can get it from boots its 6.00 but have forgotton the name sorry .
    Also graham had a suction machine with him day and night which we got from the medical supplies from the district nurse . dont be afraid to ask

  8. #8
    Newcastle Lot
    Guest
    My mother was also diagnosed with PBP last June. She has terrible problems with saliva. She can no longer speak and uses the light writer, pen and paper and a "Boogie Board" to communicate. She had a PEG fitted in February when her weight dropped quickly by 21 lbs so make sure this doesn't happen to your mum as we were warned that it had been done just in the knick of time!
    Going back to the saliva problem - she has tried tablets, patches, syrup and jelly - nothing has helped but some made her feel very sick. She is now on an hypnosis trial which seems to be having some affect and she has a suction machine. She has several choking episodes and uses a tongue scrapper to help a bit.
    She is also having problems with her dentures - she feels as though she is allergic to them - she is going to the dental hospital to see what they can do to help as she is very upset by this as has a fear now of anything to do with her month. She also uses Dentyl mouthwash which helps a little.
    Good luck with your mum

  9. #9
    bern47
    Guest
    hi nmy mum has mnd bulbar palsy no speech and mucus and saliva is terrible she has also tried patch and the other medicine especially one for your eyes amtrip?? i think they were bit reluctant about giving her this one as it was to be put under her tongue it was expensive but never worked so mam uses mucodyne twice a day it helps a bit and too keep ur tissues at the ready,choking is very frightening for them but tellin them not to panic but breathe slowly an keeping her head up should help.my mum has no control over her head ,we r lookin into getting a head support

  10. #10
    Robyn Copley-Hirst
    Guest
    Welcome to the forum, Berne

    I'm glad you've already found the Carer's Area. I hope you find the forum a good place to share your advice and experiences with people. If you ever need any help using the forum just get in touch with myself or one of our moderators.

    Robyn

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