Pip

[Denise]

They were really lovely, they explained everything to me & made me feel like im not on my own. Dr roberts is gonna send me to packworth hospital just to check my breathing out, but he thinks a lot of it at the moment is because im anxious, he said i need to relax more lol easier said then done. How did you get on?
Because you was standing up does that mean your legs work or can you just not support yourself your legs on your own! Hope you dont think im being rude by asking im just curious thats all.

[Denise]

We go next fri mags. We want to do a cruise next year. Have a really lovelytime. You can tell me all about your hols & ill tell you about mine. We are going to tenerife for 2 weeks x

[Terry]

Hi Denise;

You can ask me anything, no probemo. My appointment is normally a causal affair as my progress is slow.

My legs have weakened over the last year as they have done for six years now. I still shuffle along 15 meters or so with the aid of a walker and can stand and balance for ten minutes or so. It is a real job to lift my feet much now.

Love Terry

[mags55]

You have a good holiday too Denise.
Hi Terry,
Xxx

[Denise]

At least you can get about & you still have your independence that is lovely to hear Terry.
Yesterday was a really bad day for me, i just could not stop crying, from the minute i got up that was it. I don't think the girls at work quite new what to do lol. I do think whilst im away i have got to seriously think about packing up work as im so exhausted when i get home & that lasts a couple of days.
Love Denise x

[Guest]

Hi, I have just had some good news regarding my Personal Independenace Payment (PIP) claim which an advisor confirmed to me today when I rang I have been awarded the daily living component at enhanced rate and the mobility component at enhanced rate. I am still working full time so this will help with everything I need to plan for with my slow progression

[Lynne K]

Great news. Lynne

[Boiler68]

Hi djkc..that must be a weight off your mind...when were you diagnosed? xx

[Guest]

Hi I wa diagnosed on 30th August this year still in slow progression but yes a big weight off my mind thank you

[jaffabeach]

Hello there I would suggest asking the Consultant or Local hospice for someone who can apply for PIP under special rules if you are termianlly ill

And spend time locating the person to do this rather than making the application yourself.

This make the process simpler and straightforward ( ish )

How MND qualifies for the Special Rules ( see halfway down the page )

https://www.mndassociation.org/forprofessionals/mndmanagement/providing-medical-evidence-for-benefit-applications/

As a reminder PIP is not means tested.

Hope this helps

[Terry]

Hi All;

I've just gone through the painful process of changing to PIP. I will remain on the enhanced rates.

My wife filled the forms in with my help to the best of our ability but I'm bemused at some of my scores.

Preparing food, 4 out of 8. I can't prepare food, I lie, I can bit the top off a banana!

Dressing and undressing, 4 out of 8. I can't get any clothes on or off. I'm lying again, I managed to take a scarf off by myself.

Scored well with cutting and eating my food but give me a sausage and new whole potatoes and I could not cut them up.

Scored similar with washing myself, I done wipe my face after breakfast, clean my teeth and can wash my own hands about half of the time depending on sink etc.

I guess what I'm saying, if you are put on a lower rate, have a good look at your figures and appeal if they look as crazy as mine.

Love Terry

[Kayleigh]

There are further details about the PIP points system on the Citizens Advice website:-

http://https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/appeals/how-decisions-are-made/

Love
Kayleigh

[Barry52]

Hi Terry aka Santa,

I’m pleased your move to pip retains the higher award and I agree that the process is laborious. Why oh why do people with a diagnosis of MND still have to go through the process? I like your tongue in cheek humour and the forms take no account of disease progression.

Love,
Barry

[Ellie]

Yes Terry, I am quite sure you both could do without that form-filling and the stress of waiting for the decision

I wonder what planet the assessors live on

Love Ellie.

[matthew55]

Ask your GP to fill in DS1500. You may not be dead in six months but your life is not going to be easy is it? Stay Strong Matthew55