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Thread: Pip

  1. #71
    Denise
    Guest
    We are going away nxt week so will sort it once we are back. Maybe ill call them as im not sure i could fill the form in as my right hand is very weak, who do you think could help me fill it in?

  2. #72
    mags55
    Guest
    Anyone, my sister filled my one in for me as I have a bit of a problem writing now, I just had all the information to give her,
    Where did u say u are going Denise? We fly to Rome on Tuesday for 2 days and then on the med cruise for 9

    Mags x

  3. #73
    Forum Member Terry's Avatar
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    If you can ask the hospice Denise;

    I know, for many it's a daunting place but don't look at the title, a hospice is normally about living your life as best as you can, thus making the most of it.

    You can go and see, like most things they don't force you. They are normally used to dealing with us and offer another set of OT's, Physio's, etc.

    You could also ask your doctors as they might have some ideas. Mnda connect could also probably get someone around to help you.

    Remember, when filling in any forms to put your worse day down and not your advantage one.

    Missed you yesterday but I do understand.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  4. #74
    Denise
    Guest
    Thankyou Terry.
    I was coming out just as the doctor took you in, so i couldnt say hello. I was at the desk with my husband. I have to say what a wonderful
    Power wheelchair you have!

  5. #75
    Forum Member Terry's Avatar
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    Yes I did see you both there Denise;

    I was so lucky to get it when I did as it's really given me some independence. It is not right for everyone but it is for me. Not the most comfortable chair and not so good on uneven stuff.

    How was your specialist.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #76
    Denise
    Guest
    They were really lovely, they explained everything to me & made me feel like im not on my own. Dr roberts is gonna send me to packworth hospital just to check my breathing out, but he thinks a lot of it at the moment is because im anxious, he said i need to relax more lol easier said then done. How did you get on?
    Because you was standing up does that mean your legs work or can you just not support yourself your legs on your own! Hope you dont think im being rude by asking im just curious thats all.

  7. #77
    Denise
    Guest
    We go next fri mags. We want to do a cruise next year. Have a really lovelytime. You can tell me all about your hols & ill tell you about mine. We are going to tenerife for 2 weeks x

  8. #78
    Forum Member Terry's Avatar
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    Hi Denise;

    You can ask me anything, no probemo. My appointment is normally a causal affair as my progress is slow.

    My legs have weakened over the last year as they have done for six years now. I still shuffle along 15 meters or so with the aid of a walker and can stand and balance for ten minutes or so. It is a real job to lift my feet much now.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #79
    mags55
    Guest
    You have a good holiday too Denise.
    Hi Terry,
    Xxx

  10. #80
    Denise
    Guest
    At least you can get about & you still have your independence that is lovely to hear Terry.
    Yesterday was a really bad day for me, i just could not stop crying, from the minute i got up that was it. I don't think the girls at work quite new what to do lol. I do think whilst im away i have got to seriously think about packing up work as im so exhausted when i get home & that lasts a couple of days.
    Love Denise x

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