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Thread: problem with left foot

  1. #41
    Tikitiboo?
    Guest
    Dear Charles

    I think I might qualify for the rollator rumba .... from walking stick (September 2014) to an awful rollator suffle from Christmas 2014. I was diagnosed in December 2014.

    Thank you for your interest Charles.

    Love Anna

  2. #42
    Jock
    Guest
    Post-diagnosis Charles five months tops in my case. There can be some difficulty with that measurement of time though due to diagnosis times varying so much between us. Jock.

  3. #43
    Forum Member
    Join Date
    Dec 2013
    Location
    Surrey
    Posts
    422
    Jock:

    Thanks so much for your reply. I am still managing to commute and work but I know I am deteriorating and commuting is becoming increasingly difficult and precarious. I estimate I have until Easter to work. Its so heartbreaking to end my career because I cannot get there. I have a sedentary job so could mentally continue but the mobility is going to rule me out shortly. Stopping work is heartbreaking for all of us MND sufferers. i saw the Hawking movie and saw how he could work. But my circumstances (of needing to commute) is different and the workplace appetite would probably be different. I am at the cane at work stage and think, like you, I am down to the last three months.

    Charles

  4. #44
    Jock
    Guest
    Charles - You may able to use a walker or wheelchair to commute for longer than three months. I may have been able to do another month or two, but it all too much hassle and the World Cup in Brasil was waiting for me on TV.

  5. #45
    willsandco
    Guest
    No chance of working from home then, Charles? A lot of firms have the capacity to do that - or they can adapt and evolve perhaps! It is a shame to stop because it stops all the social interaction as well, Love Joycie x

  6. #46
    Alan Livett
    Guest
    Hi Charles. I continued to work for 18 months after I was diagnosed. Through Access to Work I obtained a grant to help pay for my contribution towards a wheelchair accessible vehicle from Motorbility. If i hadn't got a WAV, access to work would have paid for a taxi to and from work. Regards. Alan

  7. #47
    Forum Member
    Join Date
    Dec 2013
    Location
    Surrey
    Posts
    422
    Alan and Willsando:

    Thanks for the comments. More than anything your constructive suggestions galvanize my will to continue at all costs. I have a sedentary (and cerebral) job. I am determined to show people at work that my brain is not compromised. I want them to understand that I have a neuromuscular condition. I have a physical battle not an intellectual one. I am sure you (ieg Allen) faced this same dilemma.

    thanks again

    Charles

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