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Thread: DEANNA PROTOCOL vs. FISHMATE12 SUPPLEMENTS

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    DEANNA PROTOCOL vs. FISHMATE12 SUPPLEMENTS

    Hi,

    Bit of help and shared experience needed please.

    My lovely friend was diagnosed with MND in September 2014. She has started the Deanna Protocol a few weeks ago. So far she has noticed little difference, and indeed some of the supplements have made her feel unwell.

    Through our research we have found both the Deanna Protocol and the Fishmate12 Supplment regimes. Has anyone tried either or both - or swapped from one to the other??

    Can anyone give me their experience as to which regime suited them and any evaluation of the effect of the regime on slowing down progression? How long did it take before you noticed any difference?

    Many thanks for all your help and advice,

    Claire

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    Forum Member john's Avatar
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    Hi Claire,
    No experience to share. Ray of Fishmate 12 supplements is a night owl so will not look in here for some time. Some people have tried both on here but no one seems to be reporting runaway success. Unfortunately it is difficult to judge as you can only live one life and so knowing what would have happened without the supplements is difficult.
    You might find more information about various alternative supplements on alstdi forum in the USA. That is more of a collection of people trying to find answers to this disease. You will need to register to read posts and may then get requests for donations but they can be ignored or responded to with no repercussions.
    The adverse reactions to supplements may be just because the dosage is too high and should be introduced over a period of time. The general advice is to give anything 3months to see if it is working. Others introduce supplements one at a time so you can gauge the reaction in your body. If there is a strong adverse reaction then try reducing the dose and building up.
    Another philosophy is to get blood tests done and see where your friend departs from the norm. Then do some research and try to correct. This sits in with doing all you can to become as healthy as possible which gives your body its best chance of fighting the progression.
    Welcome to the forum and as ever sorry you find a need to be here. You will get plenty of practical advice on how to deal with day to day living with mnd but other than Ray(fishmate) nobody is reporting stopping the progression.
    If you look into Stephen Hawking, who is certainly this countries if not the world's longest living surviver after 50 years, you will find he takes vitamins but whether they are making a difference or he was always destined to be an a extremely slow progressor I do not know.
    Another interesting fact about the disease is that life expectancy at diagnosis is 10 years longer in India than in most of the developed western nations! Curry or other spices. Not a country famous for its healthcare systems.

    John

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    Forum Member Terry's Avatar
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    Hi Claire;

    I have tried both but I did not follow Deanna to the letter. Each of us probably have different reasons, bodies and types of the dicease so different this might work or be better for some.

    I took nearly all of Deanna four four months and felt that I had more energy and strength but my progression continued much the same. I took Ray's for about three months and they did not seem to make any difference.

    It's worth braking in slowly as some things can affect people and it's good to let the doctor know although it's very unlikely that they will know much about them.

    Regards Terry

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    Forum Member pete's Avatar
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    Hi Claire ,
    The word Nieve comes to mind, expecting results in such a short time, sorry if that sounds harsh but given that any form of mnd has so far no known cure, the idea of trying the lists of supplements that both Rays regime involves and the Deanna treatment ,to expect either to produce results in a few weeks is very much wishful thinking, quite apart from the fact ,you certainly run the risk of making matters far worse unless you asked the advice of your friends doctor before beginning any treatments , as no two people seem to follow exactly the same course of the disease has proven beyond many specialists and researchers worldwide ,who have spent millions of pounds and thousands of hours trying to find anything that worked, so far one drug ,and that only seems to give months respite . Given that any one who has been given the diagnosis of mnd by the medical proffesion ,I have not heard of one person being told to try any supplements other than to replace vitamins etc because of dietary restrictions caused by eating difficulties, never in the hope that taking vast quantities of tablets and compounds will have any positive effect on the outcome of the disease.
    We all hope and those who try self help do suceed in finding a positive outcome as Ray believes he has ,I don't doubt his claims and hope he truly has found the solution, but to expect the same regime to have the same results on others ,only time will tell.
    All I need is a miracle

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    Hi Cpatt

    You can contact the ‘Winning the Fight’ site, founded by Dr. Tedone of the Deanna protocol for more information. I had reached out to him in the past f on behalf of my own dear friend, and he was very open and receptive to answering questions about his protocol. Two years ago when I asked how was his daughter’s condition from being on the his protocol, his response was ‘stable’. I’m not aware of what her condition is today.

    Ray (Fishmate 12) does seem open and helpful to anyone wanting to give his supplements a try.

    All the best to you both.
    CC xx
    .

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    Thank you to those who have posted so far, please keep the discussion going. As for asking doctors about whether she should take any supplements, that's unlikely to happen given her "second opinion" was dished up to her in less than 5 minutes from a consultant neurologist who told her her "clinic was busy" and that she'd "had her second opinion given - it is MND - take these drugs" - so faith in the medical profession is somewhat depleted!!!

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    Forum Member Terry's Avatar
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    Don't give up with the professionals, some of them are quite good and very useful Claire. Unfortunately, some of them have an uncanny way of saying that you have a terminal illness.

    I think any one of us could do it better.

    My specialist is no good, here has not cured me yet, a Lovely chap though.

    Best wishes, Terry

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    Thanks Terry - just feel that a kind bedside manner would not go a miss, especially newly diagnosed.

    Far from giving up and this place seems to be the only place to share views and get some help.

    Regards

    Claire

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    Forum Member pete's Avatar
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    Quote Originally Posted by cpatt View Post
    Thanks Terry - just feel that a kind bedside manner would not go a miss, especially newly diagnosed.

    Far from giving up and this place seems to be the only place to share views and get some help.

    Regards

    Claire
    Hi Claire ,
    Seems most are very cold and have no people skills whatsoever, I dropped lucky with my neurologist, it was a speech therapist who informed us that I wouldn't see 2009 Christmas, I still make point of it every time we see her in the hospital that she does remember me !!.
    Pete
    All I need is a miracle

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    Forum Member Terry's Avatar
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    At least the speech therapist was right, you won't see christmas 2009 again. It seems strange to me that some neurologists, that's I think someone that has studied the brain and thinking, can not communicate in a nice way to other people. Did some not learn much in there 8 years of training.

    We will try to help Claire, none of us are experts but between us we can give informative helpful advice on most things and even sometimes in a sympathetic way.

    Terry

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