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Thread: Fasciculations, cramps, are they good or bad signs?

  1. #341
    Forum Member marieline's Avatar
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    Hi all who battle spasticity on a daily basis What can i say smile. I was so frustrated with my rt leg recently as it was not healing fast enough (post surgery after neck of femur fracture). I exercise regularly, i have 1 hr hydrotherapy session, but it fell that my leg was getting worse, more painful, stiff and always aggravated when i walk.
    I even thought to go seek the specialist opinion, was prescribed, Gabapentin to help with pain and spasticity. I discontinued the med after 16 days and sought out my trusted Physiotherapist and 1 week after a 30 minutes session, i am again in control of my leg.
    Some therapists do have the healing touch or they are really really good at what they do. All i had to tell him was that my leg felt badly sprained. Sprain is now resolved, so now my exercises are finally holding. Grateful and more convinced that exercise and stretches work where there is spasticity.
    Best wishes Marieline

  2. #342
    Forum Member marieline's Avatar
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    Good Day, Happy New Year to you all. It's been a while since i visited. I have great news. I started Cannabis oil trial about a month ago and i see great potential, although it is a tad early for me to provide any evidence that it can cure MND, but as a prophylaxis it covers mostly every system of the human body. But what i can say, is that i have not had any new symptoms. The cost and the fact that it is so difficult to get approval to use it are the main disadvantages.
    If you have been contemplating a trial of some sort and you do not have so many red tapes to get through, i would say go for it.
    I wish you all a good year and hopefully a breakthrough for all of us. Keep smiling.
    Best wishes
    Marieline

  3. #343
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    Quote Originally Posted by marieline View Post
    For those who are wondering why some people are a lot more bothered by fasciculations than others, we need to take into consideration the temperament.
    Fasciculations in itself is not painful. it feels like you are being shocked with very low currents. Sometimes they can be very violent, i supposed it depend on the muscles that are being stimulated. the larger the muscle the bigger the electric shock felt, in my case you can even see the bed sheet being kicked. The same muscle can fasciculate for a few days, usually more noticeable when you are resting. However in my case, some parts of the body, like behind the collar bones and part of the upper chest, it feels quite disagreeable. There is absolutely nothing to be concerned about fasciculations (my thoughts). They are just telling us that something is happening to our motor neurones and that the brain is trying to fix it. In my opinion it is keeping me up to date of the extent of damage that are occurring in my brain. What happened if we suppressed them?
    The reason why i added the thread was because i noticed some mixed opinions about those 2 things on the forum and talking about it will hopefully normalise them.
    I believe what some folks find most painful are the cramps. They are very painful and the best way to deal with those is to manually stretch the parts (also painful) which will end the cramping episode. For me cramps will almost always occur in muscles that have fasciculated. One of the benefit of not suppressing symptoms are that you can collect your own datas and analyse them whichever way you wished.
    The part that cramps , though annoying and painful never completely loose their strength and these parts i found respond well to exercise. As long as you remember to stop before fatigue, i always pushed past the pain point though. What happened if we suppressed the cramps?

    Best wishes
    Marieline
    Hi Marieline, I suffer from fascilations and cramp but have been taking cannabis oil which alleviates them also neck and back pain!

  4. #344
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    Quote Originally Posted by marieline View Post
    Good Day, Happy New Year to you all. It's been a while since i visited. I have great news. I started Cannabis oil trial about a month ago and i see great potential, although it is a tad early for me to provide any evidence that it can cure MND, but as a prophylaxis it covers mostly every system of the human body. But what i can say, is that i have not had any new symptoms. The cost and the fact that it is so difficult to get approval to use it are the main disadvantages.
    If you have been contemplating a trial of some sort and you do not have so many red tapes to get through, i would say go for it.
    I wish you all a good year and hopefully a breakthrough for all of us. Keep smiling.
    Best wishes
    Marieline
    Hi Marieline, just scrolled down and saw your post. Good for you. I'm now taking it twice daily before bed and after lunch as I had been getting cramps in my fingers. I am really hopeful if not a cure then certainly a manager. Jerryx

  5. #345
    Forum Member Terry's Avatar
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    Hi Jerry;

    Do you get it on prescription, if not where are you buying it from.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #346
    Forum Member Ellie's Avatar
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    Hi Terry,

    If you Google CBD Oil - that's the legal Cannabidiol bit of cannabis - you'll find products to buy.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #347
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    Hi Terry I also take it and I buy it from CBD Brothers .It is expensive but I think it is worth it .I get the blue edition oil but there are different strengths and products, it's a very good website that explains the difference
    Best wishes
    Love Chris

  8. #348
    Forum Member Terry's Avatar
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    How much do you take and when, Chris and Jerry?

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #349
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    Hi Terry
    I take about 8 drops twice a day , in the morning and evening. It helps with fascilations ,cramps,and pain that I had in my back long before MND. I thought I would try it and bought 30ml which lasted 4 weeks I have been taking it now since December and on my third bottle now .It might not work for everyone but I find it helps with anxiety as well !
    Love Chris

  10. #350
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    Quote Originally Posted by Terry View Post
    How much do you take and when, Chris and Jerry?

    Love Terry
    Terry, I live in SE Asia where it is not too difficult to get hold of. I just take a very small amount at night using a peice of linguini ( uncooked spaghetti ). It is extremely sticky so just swallow whole with a glass of water. You cannot take too much as it does give the effect of having a skinfull. I'd found I was getting neck, shoulder, finger pains and spasms but the oil alleviates this.
    Last edited by Jer780; 8th February 2018 at 11:55.

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