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Thread: My wife has been diagnosed with MND-ALS + FTD

  1. #2391
    Forum Member Dave K's Avatar
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    Thanks Linda... That was what I needed... Support.

    Never thought about a laptop by the way... Now you have got me thinking...

    Thank you

    Dave X

  2. #2392
    Forum Member john's Avatar
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    Dave,


    If you have a laptop and can borrow a projector to hook it up to you could project onto a light coloured wall, no screen needed.

    John

  3. #2393
    Forum Member Dave K's Avatar
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    WOW!... First some good news!... I have just slept for 7 (unbroken) hours, yes, that's right S E V E N... I feel so much better than I have over the past week as I have only been getting and hour here and an hour there and an hour whenever I could.

    That's the good news!

    Now to some sad news...

    Tonight will be 7 days since the passing of Julie as we all know. I have had lovely messages of condolences from my forum and Facebook friends to which I thank everyone for, however, I have not heard or seen any member of Julie's family (my step-kids and their children who are all adults by the way).

    So too those 11 family members... I am struggling to cope and am having to arrange the best funeral I possibly can for your Mum and nanan that I can & completely on my own. I hope that you can all make it to the funeral...

    Right... Moving on...

    The cremation has been arranged, the flowers ordered and paid for so at least I can sit back a few days now and take the time to reflect on everything that has happened and happened so quickly. It's been a whirlwind week of emotions, I never knew that a single person could have so many emotions running all at the same time.

    I need to register as 'Sick' this morning with 'Jobcentre Plus' (not been in one these places for 30+ years) as I have a 2 month sick note as the Dr could see that I were all over the place yesterday so that at least I have a little money coming in as I have spent what savings I had on the funeral costs.

    I need to wait until Wednesday (tomorrow) to officially register Julie with the Registrar as there was a ****-up on the paperwork delaying the ability to do this for 2 days.

    I also need, now that I have a little time, to inform all the authorities that Julie has passed but I suppose I will have to leave that until Wednesday now when I have the 'Death Certificates' in my hand.

    I need to go out and buy myself some trousers and a shirt for the funeral as I only have black attire that I have used on a couple of funerals but Julie wanted a 'colourful' funeral, no black, so looks like George and/or F&F will get a visit from me today or tomorrow

    I had been thinking of what I could do with Julie's jewellery over the past few days to which I have decided upon this morning... I will arrange everything in her black jewellery box and will give it to the funeral director to be placed inside the coffin with Julie. I know, considering everything that has (or has not) happened that Julie would have agreed with me...

    Dave X

  4. #2394
    Forum Member Dave K's Avatar
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    OH... Just in case anyone is wondering... I will close this (or ask for it to be closed) thread immediately after after I have said my goodbyes to Julie at the cremation service on Tuesday 30 August 2016

    Dave X

  5. #2395
    Forum Member john's Avatar
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    Dave when you say close I hope you mean no more posting, not deleting the thread. If left it could be a resource for others to read and learn from.

    John

  6. #2396
    Forum Member Dave K's Avatar
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    Morning John....

    Yes, that is what I meant, I would like to close (stop new posts) for this thread once the funeral has taken place, not delete it as I cannot see the point of continuing with this thread afterwards. But don't worry, I am not going anywhere. I will be back to help folk with loads of advice and tips that I have learnt over the past couple of years.

    Dave X

  7. #2397
    Forum Member WendyWooG's Avatar
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    Ahh that is good Dave, glad you have gotten more sleep and that the doctor has signed you off. This time is needed for you to process and look after yourself.
    Wendy x

  8. #2398
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    Morning Dave,

    I think that usually people stop posting on a thread rather than formally closing it, so after Julie's funeral you just need to make a final post and leave it at that. It's good that you will stay involved with the forum because as you say you do have a lot of experience and you will join a select group of widowed carers who continue to post. It may be that you might have something to say by starting a new thread of your own charting your progress in the months following dear Julie's passing, this could be helpful to others in your situation, I would be interested to know how you are getting on as I've been following your progress for some time now and will miss your regular posts.

    I was looking at your video of Julie dancing to Elvis and was struck by how quickly things progressed I would never have believed things could move on so quickly. Still I hope and am sure that you will give Julie a great send off on the 30th. John

  9. #2399
    Forum Member Dave K's Avatar
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    Update...

    Finally, I have the Death certificate... Nothing to do now until the day of the service, next Tuesday. It has been a harrowing past week but I got there in the end and all on my own too.

  10. #2400
    Forum Member Dave K's Avatar
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    Update - Wed 24/08/2016...

    I have decided that with Julie's jewellery I am not going to get it cremated with Julie (as I said the other day (I were mad at the time)) as I will never know if it all got cremated, so what I am going to do is weigh all the gold and stones in, get as much as I can for it then donate half to the MNDA and the other half to the Alzheimer's Association... This way I know where the jewellery and the money has gone.

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