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Thread: what have the MNDA done with the ice bucket challenge windfall?

  1. #1
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    what have the MNDA done with the ice bucket challenge windfall?

    Hi all,
    firstly i love the MNDA they have been great for me and my wife. I am just concerned that i have not seen or heard of any of this icb money being put to use at all. Wheres all the awareness campaigns this money could used for, like billboards up and down the country or t.v adverts? What about MND training programs for families and care agencies so they have more insight into what can be expected? What about a specifically trained and employed by the MNDA MND nurse in each county/area?
    i just want to see some action, i mean the money was donated to help our families and everyone effected by MND not for the MNDA to sit on.
    mik

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    They have put a post on Facebook this morning saying their future plans are about to be revealed.

  3. #3
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    Hi Mik,

    I doubt if your alone in wondering what happens to the money given by so many, it's disgusting to let it sit in accounts ,rather than making a difference to someone's life when they need it most, Lord knows we don't get much in the way of treatment, just getting symptom relief as and when it's needed. Let's hope those who do decide have the decency to ask before just announcing what they think is best may well be not how we see it seeing life from our perspective .

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    Hi all,

    Apologies - did not see this thread before posting on the forum.

    Mik and Pete, understand your frustrations and concerns at the delay in communicating how the money is being spent.

    Hopefully it will be clearer by this evening.

    Best wishes,

    Andrew

  5. #5
    Forum Member pete's Avatar
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    Hiya Andrew,

    Thanks ,can't wait to see the details.

    Pete

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    thanks trevor, pete and andrew.
    i'm very interested to see what the MNDA have prioritised whats best to help us MND sufferers.
    mik

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    The plans are in a post on Facebook.

  8. #8
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    Hi all,

    You can find out more here:

    www.mndassociation.org/IBCmoney

    Best wishes,

    Andrew

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    thank you andrew.

  10. #10
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    have read and its a good amount going on research, as long as its viable and promising. why not give some of the 5.1mil to genervon?
    i also think that 750,000 is no where near enough money to put towards raising more awareness?
    mik

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