Page 1 of 4 123 ... LastLast
Results 1 to 10 of 36

Thread: 'Liquid Hope' - PEG and nutrition

  1. #1
    Forum Member FlyingSoupDragon's Avatar
    Join Date
    Jun 2015
    Location
    Somerset, UK.
    Posts
    117

    'Liquid Hope' - PEG and nutrition

    Here is a post from a blog I found interesting and thought provoking.

    In Liquid Hope Eric discusses something that strikes at the heart of life, nutrition. He had problems with the liquids being trickled down his PEG. Plenty of food for though, particularly if your lunch comes down a tube.

    I'd be really interested in your thoughts guys... I'm awaiting a date with the endoscope operative.


    j-tube.png
    Toodle pip!

    Norman
    Wordpress Blog

  2. #2
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,665
    Hi Norman;

    I have never studied the ingredients and have never taken them.

    I would recommend that you have a PEG operation rather than a RIG.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    3,154
    Just to put things in perspective, HFCS High Fructose Corn Syrup, is NOT used in feeds this side of the Atlantic.
    Ignore Eric’s scaremongering about HFCS, whatever about his “Liquid Hope” that he is flogging.

  4. #4
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,665
    Hi Norman;

    I don't think your picture is correct and it is labeled wrong. I'm no expert but I believe it shows the RIG procedure.

    I think that there is a soft plastic disc on the inside and not any balloon. The balloon systems last about four months before needing replacing where the discs last for three years or more. Balloons require small maintenance every week as well.

    I have been told by my specialist that there are slightly more problems after the RIG procedure than a PEG one.

    Hospitals won't do a RIG if your breathing is poor and they will opt for a RIG or maybe PIG as they can resuscitate you easier and don't have to lay you flat.

    Love Terry

    Steve have amended this post to explain my views.
    Last edited by Terry; 26th August 2015 at 17:44.
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
    Forum Member Steve's Avatar
    Join Date
    Sep 2013
    Location
    Sheffield
    Posts
    640
    Quote Originally Posted by Terry View Post
    Hi Norman;

    I have never studied the ingredients and have never taken them.

    I would recommend that you have a PEG operation rather than a RIG.

    Love Terry
    can i ask why terry?
    sorry about the absence of caps in my posts, my shift key is broken.

  6. #6
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,665
    Hi Steve;

    I was amending my post so have included your answer into that.

    Just ask if you would like more info.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  7. #7
    Forum Member Steve's Avatar
    Join Date
    Sep 2013
    Location
    Sheffield
    Posts
    640
    aah, well i had a rig and the disc.

    i was told before my procedure that there are two systems, the balloon and the disc but they were not linked to the type of procedure. ie. you could have a peg with a balloon or a rig with a disc or vice versa.
    sorry about the absence of caps in my posts, my shift key is broken.

  8. #8
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,665
    Hi Steve;

    I was pushed into a RIG as well by local hospital even though my breathing was Ok. Should have had it done at Addenbrooks as they were more than happy to do a PEG. Still we all make mistakes or perhaps don't push hard enough.

    I think you're wrong or we have a misunderstanding about Balloons and discs. I am talking about what's inside your stomach.

    I think that the PEG tube is fitted from the inside so can have a disc to seal and retain the tube inside the stomach and on the outside skin. Where as in a RIG procedure the tube is inserted from the outside inwards, making it not possible to have a disc on the inside so that is why they use a balloon to seal and retain the tube inside and a disc on the outside of the skin.

    Not sure but a PIG might use a balloon on the inside???

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #9
    Forum Member Steve's Avatar
    Join Date
    Sep 2013
    Location
    Sheffield
    Posts
    640
    during my rig procudure the whole tube went through my mouth so inside to out. they slipped my bipap mask to the side for a split second to feed it down.

    trust me, disc inside and rig procedure. no balloons here.

    maybe it varies place to place, i might be lucky.
    sorry about the absence of caps in my posts, my shift key is broken.

  10. #10
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,665
    I think your experts have named it wrongly. Looking at the info on the net, a Rig is inserted through the skin into the stomach.

    To me it sounds like you have a PEG or maybe a PIG.

    I'm no expert but would put money on it.

    Anyway, I think you have a better method than me.

    Love Terry

    PS:- Where did you get that image from Norman?
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •