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Thread: Be Winter Ready!

  1. #11
    Forum Member Dude's Avatar
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    Yeh I lied about falls. You know, none of us have had to cope with this illness, except for a small number and accepting progression is very hard. Good idea,the girls will sort him out, I know mine do. 'Yes dad, you tripped over Simon's leg in the garden'. lol

  2. #12
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    That is good news then! Onwards and upwards! Love. Joycie x

  3. #13
    Forum Member lorret's Avatar
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    We are having a meeting tonight to discuss tactics....

  4. #14
    Forum Member FlyingSoupDragon's Avatar
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    Ellie,

    Timely advice. I'm writing this from Yeovil Hospital after a three week stay with just under a week to go (PEG Op). Pneumonia with Pleurisy on the side is not to be recommended.

    Update: PEG Thursday (tomorrow) home on Mon/Tues.
    Last edited by FlyingSoupDragon; 7th October 2015 at 15:19. Reason: Revisions to schedule.
    Toodle pip!

    Norman
    Wordpress Blog

  5. #15
    Forum Member Dude's Avatar
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    Wishing you a speedy recovery Norm. Dude

  6. #16
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    I hope you get better very soon Norman.

    Mags

  7. #17
    Forum Member Barry52's Avatar
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    Good luck with the peg op Norman. How is the hospital soup?

    Barry
    Iím going to do this even if it kills me!

  8. #18
    Forum Member Ellie's Avatar
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    Sorry to hear of your woes Norman.

    Hope PEG op goes well for you, though I don't envy the surgeon having to cut through those scales of yours

    Ellie x.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #19
    Forum Member FlyingSoupDragon's Avatar
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    Thanks for the well wishes guys, I didn’t eat anything for 10 days, couldn't face anything. Fortunately a series of (failed) attempts at sending a tube to my tum via my right nostril coincided with an upturn. I started eating again, albeit in small amounts. The soup is tolerable - just.

    As a hotel and fine dining experience hospitals are woeful. But as a way of staying alive until your next refined living experience, they are without peer though fish, chips and mushy peas and a pint of lager tops would do me. My personal heroes are the Care Assistants, if there are finer people in this world I've yet to meet them.

    Scales Ellie? The surgeons reported an extremely hard skeletal structure but got through my thick skin without trouble when they did some engineering on my spine. I just hope I don't inadvertently incinerate the guy feeding the camera on a bendy pole down my hatch - NOT looking forward to that one.
    Last edited by FlyingSoupDragon; 7th October 2015 at 15:13.
    Toodle pip!

    Norman
    Wordpress Blog

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