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Thread: Hi my name is Lee Millard and I have had MND for 3 years......

  1. #211
    Forum Member Onein400's Avatar
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    Two posts again this week....
    Firstly a retrospective in view of Awareness Month
    https://wp.me/p5hqWZ-27J

    And secondly a guest post from Peter Scott-Morgan, who is standing for election as an MNDA trustee now in June. A provocative post in MND Awareness Month. It holds no punches. Help raise awareness for this disease which will carry on hitting 1/300 of us until we find a cure.
    https://wp.me/p5hqWZ-28T

    I support Peter, and he will make a superb trustee.

  2. #212
    Forum Member Barry52's Avatar
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    Lee,

    I have voted and after reading your blog Peter has my vote.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  3. #213
    Forum Member Onein400's Avatar
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    Well just when you thought this weekend couldn’t get any better. Following England’s football win, Louis Hamilton’s smooth victory in France, England’s cricket demolishing of Australia - just to add to the great weather here is my latest #mnd #als blog post! Enjoy whilst you wind down from a great weekend.
    https://wp.me/p5hqWZ-27m

  4. #214
    Forum Member Terry's Avatar
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    Yes a excellent weekend for English sport Onein;

    Love Terry

  5. #215
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    Hi, I am Celyn, my husband was diagnosed with MND in 2007 after 2 years of visiting Neurologists. He is locked in and uses Eyegaze Technology. A brilliant bit of technology. He has a trache, ventilated, feeding tube, colostomy and cathetered. Very high maintenace, what man isn't It can be a lonely existence so i have now found this forum, yes it has taken a long time, I can pick your brains. Alternatively you can pick mine. The first thing you learn about MND is that everyone one is unique on this journey. Symptoms may be similar or quite disimilar, so hopefully our experience can be of some help.

    Not sure I have posted in the correct place. Forgive if I haven't. Newbies always mess up.
    Last edited by Celyn; 25th June 2018 at 17:09.

  6. #216
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    I have never heard of voice banking and think itís a fantastic idea.
    Thanks for sharing. I can think of nothing nicer than still hearing my grans voice when she can no longer talk.

  7. #217
    Forum Member Onein400's Avatar
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    Afternoon readers! It’s my #mnd #als weekly post. A bumper edition this week to take the pain away from the World Cup failure!
    https://wp.me/p5hqWZ-2cQ

  8. #218
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    Hi Lee,

    I read some of your blog/Diagnosis section. Was your first EMG normal? You wrote your Consultant had you repeat it 6 months later.

    What do you mean by the word "flick"?

    Kind regards,
    Richard
    Last edited by Richard2525; 16th July 2018 at 17:12.

  9. #219
    Forum Member Onein400's Avatar
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    Hi readers! It’s my #mnd #als post! This week Survivors!
    https://wp.me/p5hqWZ-2eA

  10. #220
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    Lee, didn't you see my questions in the previous post?

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