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Thread: Bypap machine advice?

  1. #21
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    It took my husband a long time to accept & get used to his machine but now finds it invaluable. The secret was to keep trying it for short periods which you gradually extend, in his case during the day at first. Definitely makes life possible!

  2. #22
    Forum Member Terry's Avatar
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    Hi Ros, and welcome to the forum;

    Yes that's a very good point, very few people can get on with them straight away. It takes time to build up their acceptance and sometimes masks have to be changed or additions made to stop the nose getting sores.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #23
    Forum Member Dude's Avatar
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    Coincidentally Ros and Terry my respiratory guy visited today. I stopped using bipap a month or two ago because phlegm build up made me remove it when in bed. He told me to try using it in the day, which I did before and seems to be OK but dries my mouth up. Doctor came today and prescribed some new stuff, so trial time again. Dude xx

  4. #24
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    Hi all,

    The doctor told my dad today that the mask can cause blisters/sores on the face. Is this true? Reading terry's post above then it can cause sores?

    Also he's been in hospital for 4 nights now while they tesr different ones. Is this normal?

  5. #25
    Forum Member Steve's Avatar
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    A proper fitting mask shouldn't. I am surprised they said that.
    sorry about the absence of caps in my posts, my shift key is broken.

  6. #26
    Forum Member Dude's Avatar
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    I think Terry meant 'sore' singular. Little bit of Vaseline will stop any rubbing. He will be getting monitored as well as mask. All good. x

  7. #27
    Forum Member BlueEyesOhio's Avatar
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    Hello all, There are 3 different types of machines (maybe more) c-pap, bi-pap and ventilator. The c-pap is used for sleep apnea and as far as I know is not used for MND. My husband has one. C-pap - name means continuous air pressure. It does NOT suck air out of your lungs. The bi-pap used for MND gently blows air into the lungs then stops blowing so the patient can exhale normally. It does NOT suck air out of the lungs. I've not had experience with the ventilator, so I won't comment.

    The only problem I had was getting used to the mask but it was not really difficult and as it has been said - working up to it a short time every few hours helped me get used to it until I could use it all night.

    I found it gave me more energy and my bi-pap and I soon became fast friends.

    Hope this helps!!!

    Love, Lynne
    Be Strong and Courageous!

  8. #28
    Forum Member Katrina36's Avatar
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    Hi Lynne,, all that is very interesting to know,, my
    Dad is getting a bipap, can I ask how long it took you to het used to it before you could use it all night?, this might sound a silly question but can you breath in at the same time as its putting air in, how does it know how much to do?,, does that make sense... Katrina x

  9. #29
    Forum Member BlueEyesOhio's Avatar
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    Katrina,
    No, that's not a silly question. That is a very sensible question. It probably took me a week or two, maybe more to work up to using it all night.

    Yes, you can breath when it is putting air in. It is very gentle and it learns your breathing rhythm and will allow you to breathe normally. It was not a scary thing. Besides you can turn it off and take off the mask anytime you want. The doctor who orders it sets the pressure and I believe it is usually set low. You can call the doctor at any time and ask to have it set higher or lower.

    Having more oxygen will make your Dad feel better. Good luck. Any more questions, ask away!

    Lynne

    I found I didn't have to set the straps tight, therefore avoiding having it feel tight
    Be Strong and Courageous!

  10. #30
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    My dad got his nasal pillow on Friday and is refusing to use it because he hates it. What will this mean for him? :-(

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