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Thread: Bypap machine advice?

  1. #31
    Forum Member Terry's Avatar
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    Hi Tabby;

    It is hard to say but probably they put him on the machine to lower his Co2 level and increase his oxygen level.

    If this is the case he will lack energy in the day time and may get headaches in the early morning.

    Many people have trouble wearing them, just see if he will wear it for a half an hour during the day time and build it up SLOWLY to a couple of hours. Bribe him if needbe.

    Good luck, love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  2. #32
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    Thanks Terry I'll try that. Yes he's had a bad day today probably because he wouldn't wear it last night. He's hardly eaten today either.

  3. #33
    Forum Member Katrina36's Avatar
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    Hi Lynne,, thanks for that information, sometimes things maybe some be scarier than they are,, I like that it's not like it's forcing air in and sounds quite gentle, and it can be built up gradually., sometimes I feel silly asking some questions, it's just the unknown though I guess.. Thanks for reply ... Katrina x

  4. #34
    Forum Member Steve's Avatar
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    The only silly question is the one that isn't asked.
    sorry about the absence of caps in my posts, my shift key is broken.

  5. #35
    Forum Member Katrina36's Avatar
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    Aawwww thanks Steve,, that so nice off you to say that 😊... Katrina x

  6. #36
    Forum Member Ellie's Avatar
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    Hi Kayleigh,

    That post seems to be nothing more than an Advert and I reported it earlier.

    In case you and others aren't aware, there is a Report button for every post.

    Unfortunately it doesn't exactly jump out as a report facility as it's the very small triangle located at the very end of the post on the left side (under the user name etc)

    I rememember the size and prominence of the button was discussed with Admin a few years ago but nothing happened - note, it wasn't the current Admin staff.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #37
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    How long does it take to organise getting one of these. My husband would relly benefit from one of these I think

  8. #38
    Forum Member Terry's Avatar
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    Hi MEJ,

    It probably depends on how close he is, contact wise and how efficient his specialist breathing team.

    Why do you think that he would benefit from one of these?

    Have I got it wrong and you are talking about a feeding tube?

    Love Terry

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