Page 4 of 4 FirstFirst ... 234
Results 31 to 39 of 39

Thread: Bypap machine advice?

  1. #31
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    1,916
    Hi Tabby;

    It is hard to say but probably they put him on the machine to lower his Co2 level and increase his oxygen level.

    If this is the case he will lack energy in the day time and may get headaches in the early morning.

    Many people have trouble wearing them, just see if he will wear it for a half an hour during the day time and build it up SLOWLY to a couple of hours. Bribe him if needbe.

    Good luck, love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  2. #32
    Tabby
    Guest
    Thanks Terry I'll try that. Yes he's had a bad day today probably because he wouldn't wear it last night. He's hardly eaten today either.

  3. #33
    Forum Member Katrina36's Avatar
    Join Date
    Jul 2015
    Location
    Scotland
    Posts
    65
    Hi Lynne,, thanks for that information, sometimes things maybe some be scarier than they are,, I like that it's not like it's forcing air in and sounds quite gentle, and it can be built up gradually., sometimes I feel silly asking some questions, it's just the unknown though I guess.. Thanks for reply ... Katrina x

  4. #34
    Steve
    Guest
    The only silly question is the one that isn't asked.

  5. #35
    Forum Member Katrina36's Avatar
    Join Date
    Jul 2015
    Location
    Scotland
    Posts
    65
    Aawwww thanks Steve,, that so nice off you to say that 😊... Katrina x

  6. #36
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    1,685
    Hi Kayleigh,

    That post seems to be nothing more than an Advert and I reported it earlier.

    In case you and others aren't aware, there is a Report button for every post.

    Unfortunately it doesn't exactly jump out as a report facility as it's the very small triangle located at the very end of the post on the left side (under the user name etc)

    I rememember the size and prominence of the button was discussed with Admin a few years ago but nothing happened - note, it wasn't the current Admin staff.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #37
    Forum Member
    Join Date
    Dec 2017
    Posts
    3
    How long does it take to organise getting one of these. My husband would relly benefit from one of these I think

  8. #38
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    1,916
    Hi MEJ,

    It probably depends on how close he is, contact wise and how efficient his specialist breathing team.

    Why do you think that he would benefit from one of these?

    Have I got it wrong and you are talking about a feeding tube?

    Love Terry

  9. #39
    Forum Member
    Join Date
    May 2020
    Posts
    15
    ANDY has been on his BiPAP since feb, he was very sick and became hypercapneic before he went on it , he was falling asleep mid sentence, jumping and hallucinating , he has it every night and is much better , all though his diaphragm has been one of the first things to be affected the BiPAP has certainly helped for the time being .. although getting used to it took a little bit of time , he got a very bad pressure sore on his nose and they tried all different masks on him but the Only one he liked was the one that went over his nose and mouth we now put an Alivin padded dressing on his nose where it presses and this has worked , no more sores . Explain to him that this will help him have more energy during the day and help him sleep much better at night and get his blood gases to the correct level. I hope this has helped a bit .

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •