Page 1 of 3 123 LastLast
Results 1 to 10 of 22

Thread: Jan Q. help!

  1. #1
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132

    Jan Q. help!

    Hi all , I am having trouble sleeping at moment and feel tired out very quickly when I do the smallest of chores, any suggestions with regards to possible medication. I am struggling in as much as I have deteriorated a lot in the last month mobility wise and now my speech going quickly,feel very down and as I live on my own and feel family don't realise that I am struggling so much as they don't see me trying to look after myself, I don't feel as though I can cope at moment. Sorry to have a moan I have been so independent until now and suddenly I am in need of some help. X JAN Q.

  2. #2
    Forum Member Dude's Avatar
    Join Date
    May 2015
    Location
    Merseyside
    Posts
    2,611
    Hi Jan Tiredness comes with the illness, I'm afraid. No one will appreciate the daily struggle. You need help. Maybe give something for the family to read on mnd . Speak to mnd connect and your social worker. Dude x

  3. #3
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132
    Thank you for your quick reply, it's good to speak to people who understand, I read blog every day for information and I have found it very useful, have tried to get family to read up on mnd but somehow I feel that they still don't fully understand what is happening to me. Will speak to mnd connect . X JAN Q.

  4. #4
    Forum Member
    Join Date
    Apr 2015
    Posts
    414
    Good Afternoon Jan,

    It must be difficult living on your own and I know what you mean about becoming tired after performing household chores, I'm finding most beyond me now. You could ask your GP to give you something to help you sleep, Zopiclone seems to work well and should help you through a difficult patch and you can always come on line here for company.

    John x

  5. #5
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,889
    Hi Jan:

    If you don't sleep well than you will have problems during the day time.

    I listen to talking books during the night as it takes my mind off things.

    I also take Larasipan about every third night to relax me and help me sleep.

    I could not imagine what some of you go through living on your own.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #6
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,447
    Hi Jan,

    Sorry you're feeling low. It's really hard when you're losing the ability to do things you did automatically before. You grieve for what you lost.

    Sleep is so important, both mentally and physically. Do you know why you're not sleeping; pain, sleeping position, stress?

    Your OT can help with aids. Could a family member spend time with you to get a sense of how difficult your life is practically, let alone emotionally?

    Thinking of you,
    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #7
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132
    Thanks Terry, I appreciate your reply very much it is comforting to speak to someone who understands, and think I will need to see my Dr for some help with my sleeping ,as for the last few nights I have hardly slept at all , very grateful, Jan Q.

  8. #8
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132
    Thank you John, I am grateful for your reply and will contact my Dr about something to help me sleep , xxx Jan Q.

  9. #9
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132
    Hi Ellie, so nice of you to reply and I would love one of my family to spend just enough time with me to see how I am struggling, funny isn't it when they visit it is not for very long so they only see me sitting comfortably and think I am ok. I think my sleeping may be because I am getting very worried now about my deterioration so possibly it is stress related, thanks for your support I really appreciate it. Xx Jan Q.

  10. #10
    Forum Member
    Join Date
    Jan 2011
    Location
    Northamptonshire
    Posts
    1,095
    I don't do much now but just going out and trying to communicate exhausts me. When I was more active, I eventually learned I had to pace myself and allow time to recover. It must be tough to be on your own.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •