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Thread: The Independent - 'We just had to watch her fade away'

  1. #1
    Forum Member FlyingSoupDragon's Avatar
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    The Independent - 'We just had to watch her fade away'

    Until now, investment has been severely lacking for a disease which kills around 35 people a week in the UK – with another 35 diagnosed. Compare the 33m spent on vCJD – variant Creutzfeldt-Jakob disease, the human form of mad cow disease – which killed 93 people between 1999 and 2004, with the 8m spent on MND which killed 6,000 people over the same period, and it's clear why such a facility is needed.
    From 2011 this interesting piece puts research funding into context.

    I must read more of The Sheffield Institute of Translational Neuroscience (SITraN)
    Toodle pip!

    Norman
    Wordpress Blog

  2. #2
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    Hi Norman,

    I quite agree that it is incredible so little investment is put into MND research.

    Our MNDA has failed in its task of raising this issue.

    Regards

  3. #3
    Forum Member hanginginthere's Avatar
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    I don't wish to cast doubt on anything MNDA does as I am new to this so don't know enough about the organisation. But do we pay a lot towards salaries? Where does the money go? Can we see finance audits/reports? Once I know a little more I may feel qualified to comment on their work.
    Nothing is impossible, the word itself says 'I'm possible'!

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    Forum Member john's Avatar
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    Hi,
    There are annual reports with accounting data on the main website.

    John

    http://www.mndassociation.org/about-...ial-statement/

  5. #5
    Forum Member kevin's Avatar
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    just in need of a bit of help from a superior brain . Been reading research and its left me unsure . Is alzimers and dementia caused by the same protine having same affect on stem cells . So dementia is MND in the brain

  6. #6
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    Hi Kevin,

    You ask a VERY pertinent question.

    Dementia is a feature of several forms of MND.

    I was disappointed that our MNDA has not commented on the trials conducted.

    I am very preoccupied and have not had the time to probe our MNDA.

    Regards

    Graham

  7. #7
    Forum Member kevin's Avatar
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    Thanks Graham
    i thought i had it right . Some papers are an easy read but others every forth word is a mystery

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