Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 38

Thread: Riluzole

  1. #21
    Forum Member JAN Q's Avatar
    Join Date
    Jun 2015
    Location
    Staffordshire
    Posts
    132
    Hi Dude, the sinus irrigation sounds very interesting as I have suffered post nasal drip for years Will consider trying this as can't seem to control this mucus problem yet , thanks as always for information on this site .more than from anyone at moment. X JAN Q.

  2. #22
    Forum Member Dude's Avatar
    Join Date
    May 2015
    Location
    Merseyside
    Posts
    2,611
    Another important thing to mention is oral hygiene. Brush teeth 3 times per day. I have
    a top denture with a few teeth on (rugby) and I keep on my desk if nobody about. lol Dude x

  3. #23
    Forum Member JAY TEE's Avatar
    Join Date
    Apr 2014
    Location
    Halesowen, West Midlands
    Posts
    239
    Hi all been on riluzole since formal diagnosis in May 2014. Blood tests been ok. Do feel a bit drowsy and have a cat nap most days. My mobility and speech have reduced a bit. Still manage to walk around the house with Zimmer frame.

  4. #24
    Forum Member Dude's Avatar
    Join Date
    May 2015
    Location
    Merseyside
    Posts
    2,611
    Cat naps are good JT. Have you considered a rollator with seat on. They are good cos you can sit down when you get tired like waiting for a bus etc. Have you got, or planned for when you can't walk, downstairs wetroom & bedroom. Dude

  5. #25
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,929
    Hi Jay;

    A rollator is generally better than a zimmer but does need a bit more room. Not all Mnd people lose the ability to walk but most do.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #26
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    2,369
    I was glad of my rollator yesterday at our daughter's graduation ceremony. There was a lot of hanging around but I had my mobile seat and it also secured us front row seats.

    Barry
    Iím going to do this even if it kills me!

  7. #27
    Forum Member GrannieAnnie's Avatar
    Join Date
    Jun 2014
    Location
    Fareham, Hampshire
    Posts
    390
    What a lovely day you must have had. Graduation Days are one proud moment for us parents and how nice to have a front row seat. Congratulations all round. Ann

  8. #28
    Forum Member
    Join Date
    Apr 2015
    Posts
    414
    I've memories of my daughter's graduation at Cambridge, after the ceremony we went for a meal and bumped into Rory McGrath who was very amusing. And to Sheffield for my son's graduation during a heat wave. That's were I met my wife, when we were both at Uni so many happy memories. Must look into a Rollator can you get them for nothing from OT or do you need to buy them on E Bay, are you comfortable with image?

    At the moment I'm with a stick which I think looks quite distinguished somehow. Anyway happy days & congratulations!

    Cheers,

    John x
    Last edited by John14; 22nd November 2015 at 15:06. Reason: making sense hopefully

  9. #29
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    2,369
    Thanks Ann. All three of our children graduated. Our son conventionally via uni post school but the 2 girls did it the hard way whilst still working and raising family. My next challenge is to see the grandchildren graduate. Only another 8 years to keep going.

    John,
    The local MNDA branch paid for mine but the OT can apply on your behalf. I am very comfortable with the image as it is the Ferrari of rollators. 0-60 paces in about 10 minutes lol. Good luck with your application.

    Barry
    Iím going to do this even if it kills me!

  10. #30
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,929
    Rollators are great if you have a self service restaurant or to put drinks on whilst moving back to your seat. I have a plain old OT model but you're right, there are some very stylish models.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •