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Thread: Lets make new friends!

  1. #1
    LEC5552003
    Guest

    Lets make new friends!

    Hey all!

    I am a 25 yr old guy who got diagnosed with PLS MND June this year. Hopefully make sum gd friends on here who really understand wot we all go thru on a daily basis. My legs failed first so standing and transfering is hardest for me, but wot I have fnd harder is my arms now failing badly. I don't know if ne1 here has ever felt like they're alone but especially at my age it is hard to get my head rnd this day to day. Hopefully I will meet sum1else who understands my mental pain in coping with this attrotious disease.

    Martin

  2. #2
    Forum Member
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    Welcome Martin!
    Though not sufferring from MND wanted to let you know we're thinking and rooting for you

  3. #3
    LEC5552003
    Guest
    Hey thanx gd to hear from u

  4. #4
    Forum Member Chris's Avatar
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    St Helens
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    Hi Martin, welcome

  5. #5
    Forum Member
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    No probs - the answer might be found in a multi million pound piece of medical equipment, or at the bottom of a 99 pence test tube, but the answer will be found

  6. #6
    hope
    Guest
    Hii....just hope we can find the answer soon

  7. #7
    LEC5552003
    Guest
    Ye hoping n praying 4 a cure asap. Gotta believe i guess. Any suggestions on how to cope till then r welcome

  8. #8
    Forum Member
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    Hi Martin,

    There are plenty of people here and on the Build-UK site that are firmly on your side, we all hate MND and are commited to fight it.

    Being left by fair-weather friends in our routine lives is common, but as you say new ones are to be found. Speak to your local MND Association and arrange for a MND visitor.

    PLS dx is not as aggresive as ALS so the doctors say. I am 3 years into PLS turning ALS.

    Best wishes

    Graham

  9. #9
    LEC5552003
    Guest
    I am sorry to hear u have had this disease 3 yrs must be tough going. how bad is it at the moment? The MNDA are arranging a visitor asap.

  10. #10
    Forum Member
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    Hi Martin,

    It is and has been tough. I've had to wind up my business, can't walk, speak clearly, write. Had a crisis of breathing and blue fingers.

    In the face of the doctors not holding out much hope, I can see and feel my body recovering, it shouldn't happen but it is.

    Use your youth and strength as much as you can to resist. Treatment is closer to hand than ever before.

    Best wishes

    Graham

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