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Thread: peg or not to peg

  1. #21
    Forum Member Dude's Avatar
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    Ensure Paul

  2. #22
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    Hi Paul, glad I was some help.
    Top peg nurse came yesterday to check out my peg, she feels it's just over granulation. Therefore, she has sent a request for some cream to my GP. If this doesn't work, I will just have a scan to see what's going on inside but she feels sure that it's just my body trying to heal.
    I noted the Welsh flag, my mother was Welsh and all her family live in South Wales. I used to spend a lot of time there as a child.
    Anyway, hope you don't have to wait long for the procedure.
    Mags xx

  3. #23
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    No one has offered me a PEG or a RIG yet but I am sure someone will at some point - won't they?

    Obviously when they do I will think of Dude and wonder if Ensure is the answer instead!

    This thread is fantastic for giving me a lot more information. Thank you all.

  4. #24
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    Hi Susan
    Yes, I was recommended the peg from both my nuerologist and dietician, I didn't fetch the subject up.
    I've never taken ensure, no one suggested it to me.??
    Mags x

  5. #25
    Forum Member Terry's Avatar
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    Hi Susan;

    Many people have trouble keeping hydrated later on, particularly if you have a bad cold. Food drinks can be an answer for a few that are able to drink maybe another pint and a half of water type drink.

    Sometimes a feeding tube is never needed, it depends on how things happen.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #26
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    I don't think my bulbar onset bodes well but the speech therapist assessed my swallowing yesterday (apparently pretty good as I could do water, custard and a biscuit and not choke or struggle to swallow any of it).

    I hadn't even thought that it might not be needed (although I am assuming it will be) - maybe they just won't suggest it until there is something I can't eat or drink but it actually looks a pretty good insurance policy for the future.

    I do have a tendency to keep forgetting that not everything will happen to everyone. I must try and get over that!

  7. #27
    Forum Member Terry's Avatar
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    I you have breathing tests, it's a good idea to ask them as well. Because your breathing ability affects what type of feeding tube you have fitted if needed.

    Just ask the specialists what they think and make your own decisions as they tend to treat us all as the same and air very much on the side of safety.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  8. #28
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    I haven't had breathing tests either. I think because I was diagnosed pretty quickly I am a bit boring for them - I keep being asked all sorts of questions where I go 'no, not yet' but it gives me a good idea of what they expect to crop up. They did talk about testing oxygen to get a baseline though.

    Funnily enough after reading all the stuff on this thread I lay on my back for some time in bed last night just to make sure I can! So far, so good. As my next appointment is a month away I will definitely have a lot to ask then - I wonder if they will be thrilled.

  9. #29
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    Susa, you have got to consider what happens when you can't swallow medication! I had hadf my peg fitted for 9 months before I got a chest infection and it affected my swallowing., All medication goes down peg now. I have never regretted it, love Joycie X

  10. #30
    Forum Member Steve's Avatar
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    It's good there are so many positive experiences.
    sorry about the absence of caps in my posts, my shift key is broken.

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