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Thread: Welcome to our newest forum group

  1. #1
    Forum Member MNDConnect's Avatar
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    Question Welcome to our newest forum group

    This forum group has been created to allow you to ask us, the MND Association Connect team, questions about motor neurone disease. We will aim to answer as soon as possible.

    For more information on who we are click here.

  2. #2
    Forum Member Terry's Avatar
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    Welcome Mnda Connect;

    Many of us here can't talk or use a phone. I sent an email to yourselves and an automatic reply said that it could take three days for you to reply.

    I just wonder if, apart from the weekends they could be answered sooner, as sometimes they are a urgent cry for help and it can be our only way of asking.

    It is good that you will be looking in here as well as maybe you can put us straight on somethings.

    Regards Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member MNDConnect's Avatar
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    Hello Terry

    Thank you for your very kind welcome.

    Whilst our automated email response does give our response time as being three working days, it is very rare that it would take this long for someone to receive a reply from us. Between 9am-5pm Monday-Friday the emails are checked constantly by the team and answered. If an email is particularly complex, it might take slightly longer for us to respond.

    We are really looking forward to being a part of the forum and giving people another way of being able to contact us.

    Kindest Regards

    MND Connect

  4. #4
    Forum Member Terry's Avatar
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    Can we have the first names of people posting, just to make it a bit more friendly, if not don't worry.

    I did get a reply sooner than three days and unfortunately for many of us emails can't be used as a secure and reliable form of communication.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
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    Welcome to the forum family MND connect. Agree with Terry friendly names would be nice and more personal

    CCxx
    .

  6. #6
    Forum Member MNDConnect's Avatar
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    Hi Terry and CC

    I've spoken to the rest of the team and we all really like your suggestion of us using our first names rather than just MND Connect. The whole MND Connect team has access to this account and will be checking it regularly so posts will come from various team members. We are only a small team of 6 people though.

    Kindest Regards

    Rachel

  7. #7
    Forum Member Terry's Avatar
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    Thanks Rachel;

    Ahh, that's better.

    Regards Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  8. #8
    Forum Member Barry52's Avatar
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    A great idea MND connect team and I'm sure we will find this useful.

    Barry
    Iím going to do this even if it kills me!

  9. #9
    Forum Member MNDConnect's Avatar
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    Thanks Barry, we really hope that people do find this useful.

    Kind Regards,

    Adele

  10. #10
    Forum Member Dude's Avatar
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    Hi Adele Give us a song luv. Dude x

    Didn't Graham post on here ?.

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