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Thread: MNDA AGM, Election of Executives - Forum Debate

  1. #1
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    MNDA AGM, Election of Executives - Forum Debate

    Hi All,

    My view is that people with MND would be best served if the MNDA was Executively led by patients/carers rather than medical research.

    Further, I see an executive conflict of interest with medical research presence on the board when discussing the merits of therapies from off these shores i.e. NP001.

    I would welcome other views, including the current executive and candidates, before I/we vote.

    Best wishes

    Graham

  2. #2
    Forum Member MattJ's Avatar
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    Hi Graham,

    I think I had information on this but can't locate it. Is there anything online about the current executive and candidates?

  3. #3
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    Hi Matt,

    See www.votebyinternet.com/mnd2011

    Best wishes

    Graham

  4. #4
    Jacqui Priestley
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    I can't help wishing that we had a better platform for developing our own trials here in the UK, but is the lack of trials an MNDA issue or a result of the lack of an effective pharmaceutical industry here plus lack of government funding? Not sure.

    Btw there are patients and carers on the board of trustees

  5. #5
    Forum Member MattJ's Avatar
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    How do we find out who's on the board? I'm intrigued.

    Also ... does the MNDA website have a page showing all the top bananas in the charity? I can't seem to find one.

  6. #6
    Jacqui Priestley
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    Check out the annual accounts & Board of Trustees report

  7. #7
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    some info on charity commission website

  8. #8
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    Hi Jacqui,

    At a board meeting early this year, a decision was taken to fund the 'Ring Finger' research ahead of supporting NP001 trials in the UK. Disasterous mistake with hindsight. So who on the board will take us forward, save our souls? Can we target them?

    Best wishes

    Graham

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