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Thread: Rizolule

  1. #1
    Forum Member Katrina36's Avatar
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    Rizolule

    Hi everyone, my mum is wanting to ask this question about rizolule, it says on the box for it to be taken 1 hour before food or 2 hours after, does everyone stick to the rule or can it be taken at breakfast time with the rest of medication to reduce the amount of times he has to take all medications or to stop going into the peg so often?,,, thankyou... Katrina x

  2. #2
    Forum Member Terry's Avatar
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    Hi Kity;

    I try to follow the guide lines but I do what fits sometimes. They are OK with food but they probably don't work so well. If he has trouble taking them they are OK to take with a spoon of something. Or crush them and put through the feeding tube, mind you you can also get a liquid for that. Some makes have better coatings so they don't dissolve in the mouth so quickly.

    Love Terry
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  3. #3
    Forum Member Dude's Avatar
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    Kat I just take it morning and night with other meds. Dude x

  4. #4
    Forum Member Ellie's Avatar
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    Katrina,

    Yes, Riluzole should be taken on an empty stomach for maximum absorption of the drug.

    xx.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
    Forum Member Katrina36's Avatar
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    So do you all think it's better just to take it as stated then to get the full benefit from it, I'm always trying to find ways to make this mnd easier for him... Kat x

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    I was told to flush water through the PEG between each medication and better to get liquid version rather than crush tablets

  7. #7
    Forum Member Katrina36's Avatar
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    Hi Miranda, I was always told never to crush tablets through my sons peg, so I was lucky enough to manage to get rizolule in liquid form .. Dad in the morning goes I've to the yard, now if mums not there when he goes he can't put it down himself in peg as he's to weak to open and close clamp which I put on a different thread, so I was wondering if it was possible to take it anytime orally?.... Katrina x

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  9. #9
    Forum Member Katrina36's Avatar
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    Thanks for the link .. Kat x

  10. #10
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    Hi Kat
    I had no idea that it should be taken on an empty stomach, I've always taken it straight after my breakfast and last thing at night.
    Also, I asked my GP for liquid rilizole, which gave me, but when I told my nuerolgist, she was shocked as it is very very expensive, especially as I put it through peg? But the tablet form is hard to dissolve, it's leaves bits of the coating in the syringe.
    Xx

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