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Thread: Getting off the loo

  1. #1
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    Getting off the loo

    Hi All
    I was diagnosed with MND in July 2012 and have been gradually going downhill ever since. Up to recently I have been fairly mobile, living downstairs and using a trolley for support but lately my arms have weakened and getting out of my powered chair and off the loo have become a problem. I have seen hydraulic seats for toilets that would be a big help but they are very expensive. Do you know of any grants available for this kind of equipment? I was told to contact you by the local hospice which I visit once a week
    Many thanks
    Dugald

  2. #2
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    Hi
    Just realised I have misled you. My symptoms started in about July 2012 but I was not diagnosed until July 2014.
    Apologies
    Dugald

  3. #3
    Forum Member Terry's Avatar
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    Welcome to the forum Dugald;

    It would be good to ask your OT and also the OT's at the hospice. I have a sit to stand electric hoist that my wife can use if my back is bad or I have other problems. Will a grab rail in front of you do for a while, maybe even a fold out one the same as the ones that are used on the side of loo's but use one higher and in-front.

    It is nice to keep your independence as much as possible, so something does not require others is the best answer. There are also many frames and raised seats that make it easier to get up.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  4. #4
    Forum Member MNDConnect's Avatar
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    Hi Dugald

    Do you have an Occupational Therapist (OT)? We do provide Support Grants which can sometimes be used towards the cost of equipment. We would need an application form to be completed by your OT. You can find out more about the Support Grants and access the application form on our website here http://www.mndassociation.org/gettin...ople-with-mnd/

    If your OT has never completed the form before or has any questions about the grants then they are very welcome to give us a call on 0808 802 6262 and we can go over it with them.

    Best Wishes

    Rachel

  5. #5
    Forum Member JAY TEE's Avatar
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    Dugald hi I am bit like you had hip pain some years ago and finally formally diagnosed in May 2014. Mine is my left side mainly and now speech soliva bit worse. As for using the toilet suggest get in touch with OT (occupational therapist) . My local authority been great. I have raised toilet seat and they supplied a metal frame as well. This helps you push yourself up. They have also supplied a bathroom wheelchair. This has has toilet bucket underneath and remove it and be wheeled over the toilet as well if needed. You can learn a lot off the forum.
    Jay Tee

  6. #6
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    Hi
    Many thanks for the replies. I do have a frame round the toilet but even that is not enough now. Tell a lie, I could probably get up but my arms would be so weak from the effort that walking back to my chair could be a problem. I have fallen before now.
    I will pursue the OT angle.
    Dugald

  7. #7
    Forum Member Dude's Avatar
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    Hi Dugald, one of my childhood friend's dad was Dugald, Scottish I believe . It sounds like you live alone so if that is the case you need to plan ahead not just cater for today but what will happen down the line. My advice is give up walking before you have to. Your next fall may break your hip. JT & Terry both mention having someone to assist them . A carer is the most precious bit of kit. Dude

  8. #8
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    Hi Dude
    Don't worry, I don't live alone. My wife helps me. We have routines to get me where I need to be. The problem is that her back is not as good as it was so anything that can take the strain off her is good hence the hydraulic loo ejector seat.
    Many thanks
    Dugald
    Ps Scottish Gaelic as suggested

  9. #9
    Forum Member Dude's Avatar
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    Hi Dugald You seem to have arrived at a point where you require personal care. It is possible to have your wife push you over the toilet but she would need to obviously clean your bottom because cleaning yourself is not possible. From the toilet you can be pushed under the shower. You could stand up using the end of the bed and lower yourself onto the shower chair. Dude.

    https://www.youtube.com/watch?v=-PS9VWZ1HkU

  10. #10
    Forum Member Dude's Avatar
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    Dugald Have a look at this website. There a few things to helpl. Drop down rails for toilet , shower chairs & Bath lift. Dude

    http://www.uksmobility.co.uk/bathing...orca-bath-lift

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