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Thread: First Anniversary of Diagnosis

  1. #1
    Bakerchick
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    First Anniversary of Diagnosis

    Today marks the first anniversary of my formal diagnosis. I started noticing symptoms in June of the year before - couldn't swallow my dietary supplements. My voice is pretty much gone and I can feel myself slowing down. I'm physically weaker than I used to be (I was very strong). BC

  2. #2
    Forum Member Katrina36's Avatar
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    Jul 2015
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    Hi BC,,, lets hope we see another message this time next year with your 2nd anniversary since diagnosis... Your so brave .... Katrina x

  3. #3
    Dude
    Guest
    Hi BC We have all gotten weaker but just keep going . Dude x

  4. #4
    Susan
    Guest
    I love the fact it is one year since your diagnosis. You may be slowing down but I bet we all are, MND or not really. Just a bit faster for us!

  5. #5
    missmuffett
    Guest
    It's coming up to 12 months for me too,mine is the end of April.Since that date, I have lost the full use of my legs in November,hands and arms now weakening,my lack of swallow means no more crisps for me(!) and my voice started fading / straining in December.Still here though ,so that says something .....Love to you all !

  6. #6
    JAN Q
    Guest
    Hi miss Muffet
    I am at the same stage as you almost identical by the sound of it, I was diagnosed in June so my first year is couple months away but sure I could have been diagnosed in March as I had two appointments cancelled in the March. My speech is now so poor sometimes I can't get any words out so have to write it down,this is so frustrating with everything else to cope with too. I lost my mobility in December so have been using a motorized wheelchair since then and without it I couldn't survive in my flat as I am on my own. I get bit down but as you say still here and hoping to have RIG fitted soon to help me with fluids and ensure drinks.
    Xx Jan Q.

  7. #7
    Bakerchick
    Guest
    I do feel very lucky that I still have my mobility. My eating and drinking is getting difficult. When I was in India in November I had my fortune and I was told I would live until I was 91 with no serious health problems! Bless him - he was only telling me what he thought I wanted to hear. Sadly I only have a 5 year financial plan. BC

  8. #8
    Forum Member Ellie's Avatar
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    Oct 2012
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    3,088
    Hi BC,

    I guess "Congratulations" isn't the appropriate term but you've done so much in a year - changed continents, travelled and learnt all about a branch of Neurology!

    I hope the next year is good to you.

    Love Ellie (9th anniversary celebrated two weeks ago)
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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