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Thread: Total immediate paralysis, any one heard of this with MND?

  1. #1
    PoetChristopherRobin
    Guest

    Total immediate paralysis, any one heard of this with MND?

    Hello again,


    last Sunday I got out of the wife’s side of bed to use the loo (as she had already left for work) and I decided to check the time as I went about the bottom of the bed I fell onto the actual bed and I could not move any limb or get up or speak? It took me four attempts to lift my head

    Next day I was talking with our local mnd development advisor, I mentioned this and she told me it can come on just like that, total paralysis, or it would otherwise be gradual.

    I(n a way I wish I’d never found that out, and it worried me more so to think I would have lay on that bed paralysed (in just my underpants) for 9 hours while my wife was at work, I would not have even been able to call her on the phone, or for help when she had came in with her workmate

    Its indeed a nasty disease

  2. #2
    Forum Member
    Join Date
    Jul 2011
    Location
    Bridgend
    Posts
    79
    Hi Poet,

    My husband hasn't had this or have we been told of it but thought I'd just respond quickly to you to say have you got anything like Telecare -a 'panic button' service to help you if you fall when at home alone?

    My husband had a fall last weekend and couldn't get up which prompted us into looking at it for when I'm out and he's alone.

    We spoke to our OT about it after and she's arranging the service for us.

    And yes, it is indeed a relentless, scary disease every day.

    Tracy

  3. #3
    Forum Member Jeannie's Avatar
    Join Date
    Dec 2010
    Location
    Cambridge
    Posts
    611
    Never heard of this in my life, well not mnd related. I have heard of people laying in bed unable to get up due to sudden paralysis which last only a few minutes.
    Best wishes

    Jeannie

    Please donate and share forever grateful xx Please see the link https://www.gofundme.com/83tq5j-help..._co_campmgmt_w
    ______________________________________
    ALS onset June 2000, dxed July 2001, I am 40 yrs old.
    Living and loving everyday regardless of ALS although I do have my down days.
    I'm singing and dancing inside!

  4. #4
    PoetChristopherRobin
    Guest
    Thanks Crazy Girl, we've yet to get a panic button, have the paperwork here though, Jeannie, the Physio was reiterating what you said just yesterday, it can come on a last for minutes or an hour or more, seems ever case is indeed very different, its scary to heck for sure

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