Currently in a difficult position with my partner (age 27) of whether to have the gene test- the one in this case is FUS!
More things against having the test but the big for is obviously having healthy children and a healthy partner!
50% risk he has the gene, 50% is going to actually develop into MND and 50% it will be passed on to our children!
Got the genetics appointment in June.....any useful info or advice would be great!!