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Thread: Neck Brace Allowing Chin Down Swallow

  1. #1

    Neck Brace Allowing Chin Down Swallow

    Hi anyone come across a neck brace that holds weight of head but allows a good chin down swallow when eating drinking etc.

    Hubby tried all of Neuro OTs

  2. #2
    Forum Member MNDConnect's Avatar
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    Hi,

    I'm so sorry to hear that you are having difficulties finding a suitable neck support for your husband.

    Generally speaking head supports only allow for very limited downward movement of the head. I wondered if your husband's OT had looked at collars with a cut away area in the neck part, as this may make swallowing easier for him? These type of collars include the Headmaster and the MND Oxford Collar.

    Some people with weak neck muscles often use more than one collar, as unfortunately one collar may not meet all their needs. In addition some people choose not to wear a collar all the time. Say for example meal times. If this is the case, guidance regarding seating, positioning and modifications to diet should be considered. This would require input from a Speech and Language Therapist, dietician and an OT.

    I have included a link below which features a number of head support options you may wish to discuss with your husbands OT.

    https://www.mndassociation.org/wp-co...ne-disease.pdf

    I do hope this information is helpful.

    Kind regards
    Ruth
    MND Connect

  3. #3
    Forum Member Terry's Avatar
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    Hi Edward;

    Some people do find that a soft foam collar works OKish. It's good advice from Ruth and a good guide from the Mnda.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  4. #4
    Forum Member Ellie's Avatar
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    I've had lots of collars through my progression. The soft foam ones are really only suitable for the beginning as they cannot support the weight of the head.

    The only collar I have been able to eat & drink successfully with is the Sheffield Snood. It lets me tuck in my chin; neither the Headmaster or hard cervical collar did. Your hubby might be different.

    Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
    Forum Member Ellie's Avatar
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    Hi, me again

    Just thinking; how does Edward drink liquids?
    This is what works for me: I drink through a straw, not too long so it doesn't take too much effort to get the liquid. The mug is raised up on books so I don't have to bend over too much. I can't have people holding the mug for me as I can't get the correct, sustained drinking angle, it's easier if the mug is on a flat, secure surface.

    Of course he probably knows all this...

    Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #6
    Alienista606
    Guest
    straw .. I using to.
    Found that are important to have straw made from harder plastic.
    Same straw can
    collapse during sip.
    my favourite are green from Starbuc

  7. #7
    Thanks for info, just googgled all your suggestions. Hes got Headmaster and uses that when in Stand Aid Hoist. Has cheap foam one for travel in powered wheelchair in car. Looked at Sheffield Snood. Don't think its in manufacture. Looking on internet has thrown up lots of threads of small organisations looking into problem, but actually tracking one down to buy or see if OT can buy looks problematic.

    Hes been using straws for long time, and Thicken Up. Its the tired when eating issue. Has RIG so spose will eventually move to enteral 'eating' all time, but he likes eating and tasting food.

    Will go off and do some research. Thanks million

  8. #8
    Forum Member Barry52's Avatar
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    Hi Edward,

    If you contact Sheffield Hallamshire hospital they are still issuing snoods.

    Barry
    Iím going to do this even if it kills me!

  9. #9
    Thanks emailed Sheffield last night, so fingers crossed they may still have one. Have also asked Hubbys Neuro OT for a sample of Oxford Brace, with the prongs down chest. She been able to issue them in past.

    On same subject what do any of you do about travel in car in power chair? Hubby finds it very uncomfortable as bouncing about a lot especially head. Really only gets in car to go to hospice once week. Any suggestions?

  10. #10
    Forum Member Ellie's Avatar
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    If Sheffield don't have the Snood, these hospitals also had them:



    • Oxford Radcliffe
    • Walton Centre, Liverpool
    • King’s College, London
    • Cambridge
    • Preston
    • Salford Royal Hospital
    • Queen Elizabeth University Hospital, Glasgow
    • NHS Lothian, Edinburgh
    • Beaumont Hospital, Dublin


    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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