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Thread: AGM: Prof. Dame Pamela Shaw's Presentation

  1. #1
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    AGM: Prof. Dame Pamela Shaw's Presentation

    Please can you provide a link to Prof Shaw's presentation, it was on your website yesterday but I cannot find it today.

    Thanks

  2. #2
    Forum Member Ellie's Avatar
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    John, I posted this link yesterday.

    http://livestream.com/eventstreamingcompany/mnda

    Have a Red Bull first
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member MNDConnect's Avatar
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    Thank you Ellie

    Best Wishes

    Rachel
    MND Connect

  4. #4
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    Yes Ellie I know, if you look you will see that it takes you to a much shorter clip only a few minutes long of highlights.

    There are a number of other longer clips but none that I have been able to find which feature Prof. Shaw.

    Don't really understand Red Bull along with Twitter, Amazon Prime, Android Systems and i Phone 7 don't know why I used to be well up on Watney's Red Barrel, tappets, VHS recorders and Scart leads!

    Stuck in a chair today, really bored!

    John

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    Rachel, check it out, tell me if I'm wrong.

    John

  6. #6
    Forum Member MNDConnect's Avatar
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    Quote Originally Posted by John14 View Post
    Rachel, check it out, tell me if I'm wrong.

    John
    Hi John

    It's the 3rd video down that is Dame Prof Shaw's presentation. Is this the one that you are having problems with?

    Best Wishes

    Rachel
    MND Connect

  7. #7
    Forum Member Ellie's Avatar
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    No John, it is her full presentation - over 1 hour of it.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #8
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    Yes Rachel sorted, thanks, could not see it before, I'll settle down for a good old view in a bit.

  9. #9
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    Quote Originally Posted by Ellie View Post
    No John, it is her full presentation - over 1 hour of it.
    Ellie,

    Yes I can see it now, thanks ,

    John

  10. #10
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    I've watched it now, not followed 100% but it's clear that there is good work going on in field of genetics which look likely to produce an effective therapy within as little as 5 years. It's good to see the efforts that are being made to overcome this ****** disease.

    Set aside an hour or so to watch it after you have caught up with yesterdays hour long Archer's trial verdict, good news there as well.

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