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Thread: Vit B-12 on NHS ...any on trying??

  1. #1
    Forum Member Alienista606's Avatar
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    Vit B-12 on NHS ...any on trying??

    Vit B-12 on NHS ...any on trying??
    hired that US ALS Worldwide highly recommended injection B12 with Neudexta
    Max

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    MND is stowaway on My life journey.
    Take free ride but I'M DRIVER HERE!!!!

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  2. #2
    Forum Member Lycanthrope's Avatar
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    Hi Max x I don't know anyone trying it on NHS, but I'm pretty sure Marieline was having B12 injections, which she found helped. Maybe she'll be able to tell you some more? I can't remember if Ray the Radical mentioned B12 in his posts. It might be worth checking his posts too I guess. Sorry I can't be more helpful. tc xxx Becky

  3. #3
    Forum Member Alienista606's Avatar
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    tx Becky
    I searched all forum and can't found anything about b12
    Max

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    MND is stowaway on My life journey.
    Take free ride but I'M DRIVER HERE!!!!

    @@@@@@@@@

  4. #4
    Forum Member Ellie's Avatar
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    The injections given in the U.S. are B12 Methylcobalamin, a natural form of the vitamin which is easily synthesized by the body.

    The B12 injections given by the NHS are hydroxocobalamin, a synthetic B12, primarily used to treat B12 deficiency.

    The two forms are not the same.

    Methylcobalamin injections are available privately.


    Max, there is lots on B12 on the forum; it comes up regularly enough.
    Last edited by Ellie; 26th December 2016 at 16:18.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
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    This is very interesting as my mom has just started having the b12 injection on the NHS and they are giving her the hydroxocobalamin, she doesn't have a b12 deficiency but after reading the benefits of this we pushed for her to have it, but it sounds like she isn't having the right one from what you are saying. Maybe we need to go private. Also they are only giving her 1mg once a month and I'm sure to benefit she should be having more and more often.

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