Results 1 to 6 of 6

Thread: Botox in the jaw

  1. #1
    Forum Member
    Join Date
    Jul 2015
    Location
    Orpington
    Posts
    764

    Botox in the jaw

    Hi
    I've been waiting 3 months for a appointment to see if Botox will help my clamping of my jaw, it's being chased, hopefully I will get an appointment soon. I went for my 3 monthly catch up, with my neurologist yesterday. She told me, the Dr may refuse to do the Botox, as I am the first person she has ever sent for Botox in the jaw. She said I'm an extreme case., as she has never seen another patient with as much stiffness in the face and jaw. I also yawn excessively, around 50 times a day.
    I'm wondering if any of you suffer with the same and if you been for Botox in the jaw??
    I've lost count of how many times I have bitten lip and the inside of my cheek, what's more, I can't release my jaw for a few seconds and it's so painful. I can't get my toothbrush out of my mouth, as my teeth clamp down on it, and is hard to release.

    Mags xx

  2. #2
    Forum Member GrannieAnnie's Avatar
    Join Date
    Jun 2014
    Location
    Fareham, Hampshire
    Posts
    390
    Hi Maggs
    I have the same problem. Jaw jerk, biting my lips and cleaning my teeth. I have to force the toothbrush in to my mouth and often can't get it out. If it goes electric there's no end of noise as it hits my teeth. I have found since no longer eating my teeth are moving and this is not helping to stop the biting of my lips, have to tug my lips from my teeth sometimes and it hurts too! Ann xxx

  3. #3
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,315
    Hi Mags,

    Find out if there is a specialist Dystonia Neurologist at your hospital as some people with Dystonia get Botox injections in their jaws. That Neuro would have proper expertise and know how much to inject and where.

    Before our MND Clinic Physio trained up on Botox, I had my (leg) injections in the Dystonia Clinic.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member
    Join Date
    Jul 2015
    Location
    Orpington
    Posts
    764
    Hi Ann
    I remember, you have the same problems as. I use a stick sponge to clean my mouth out, but once it's in, I can't get it out.
    Do you suffer from excessive yawning? I have to pull my lip out, like you do, every time, if I'm quick enough I either bite my lip or get my finger stuck in between my teeth. The most painful one is, when I bite my inside cheek. Like you when my are very dry, teeth get caught in my bottom lip, what helps is the dry mouth gel, I keep putting it on my lip. Try some if you haven't already.

    Hi Ellie, thanks for the tip, funnily enough, my other neurologist thought I had dystopia ages before I was diagnosed with MND.
    She is the one that has reffered me to the Botox person. So hopefully, it's one that treats dystonia.
    I have been waiting for 3 months, that is equevlent to three years to us. Hopefully they will rush it up.
    Mags xx

  5. #5
    Forum Member GrannieAnnie's Avatar
    Join Date
    Jun 2014
    Location
    Fareham, Hampshire
    Posts
    390
    Hi. Mags, what is the dry mouth gel you put on your lips. Ann x

  6. #6
    Forum Member
    Join Date
    Jul 2015
    Location
    Orpington
    Posts
    764
    Hi Anne
    It's called Biotene. I got it off the GP, there's four tubes in one prescription. You have reapply sometimes, your teeth will just slide off your lip, as long as you keep your lips moist, by keep applying it.
    Mags xx

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •