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Thread: Stairlift

  1. #1
    Forum Member Rumba's Avatar
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    Stairlift

    Has anyone managed to get their OT to get them a stairlift? I asked but was told it was not their policy to provide people with progressive disease stair lifts. Our local MND group said they would fund it but still the OT is saying she can't ok it. Has anyone else had similar problems?

  2. #2
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    Hi, my mom had a visit from an Ot from the council
    And they said because she can manage going up and down the
    Stairs then they will not agree to one even though it completely
    Tires her out and she gets breathless and she has also fell a few times.
    I think it's disgusting, they said they will get some crap rails instead, even though
    I explained to them that her gripe isn't very good. I hope you get you're stairs lift soon x.

  3. #3
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    My OT put in a request to the local MND branch.

  4. #4
    Forum Member Terry's Avatar
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    Hi Rumba;

    Most diseases shorten lives and we all generally progressively get worse as we get older. Stairlifts do work well for some Mnd people, if I had one fitted I would have had five or more years sleeping up stairs and having a soak in a bath.

    They can be all that is needed for about 10% of us but most will require some other means sooner or later.

    So people do rent one for as long as it is required and that is probably a good way to go as they will install and take it out when not required. Perhaps speaking to your specialist might help you in making a decision.

    I would ask/phone Mnda connect and ask their advice.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
    Forum Member WendyWooG's Avatar
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    We were lucky as my husband is an engineer and we bought one from eBay very cheaply and he fitted it. There are places that will rent them so it's worth looking into that.
    My O.T also said my local councils policy was that they would not provide a stairlift and she is a fantastic o.t that has been really helpful. It's just they wouldn't allow it, in my case I can understand why because after about six months I could no longer use it. We just sold the stairlift on, so for the six months it only cost us a little.

    Wendy x

  6. #6
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    We were told to move house as the Council has no money. We aren't but we are aiming for a through floor lift before I need it.

    My OT is fantastic so if it turns out I stop being able to climb stairs before the lift we can get a stairlift temporarily from the Council and pay 5 a month. However I am in Scotland where things may be different.

  7. #7
    Forum Member Rumba's Avatar
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    Thanks to everyone for their replies my local MND group have been great and followed this up for me by speaking to my OT and neuro services in the community as MNDA are not aware of any directive regarding not providing stair lifts to people with MND. There is another meeting in a few weeks to discuss this matter further which I hope will resolve this issue for people in the future.

    Meantime I did the same as Wendy and bought a second hand one on ebay my core strength is good having danced all my life which I believe can also a safety issue with some users. I know the stair lift will make my quality of life so much better at the moment.

    Andrea

  8. #8
    Forum Member Christoff's Avatar
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    Hi Rumba

    I attended my specialist clinic last week and informed the consultant we were looking at installing a stairlift, she was very against the idea as she said many people have fallen from them. She stressed the point of our inherent lack of balance! I was quite shocked at the resistance of the issue - but as I said to them I will take your advice. We are now going ahead with a down stairs garage conversion

  9. #9
    Forum Member Terry's Avatar
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    Hi Christoff,

    I used one for the first time a couple of months ago and it felt very safe. Transferring at the top could be an issue.

    A lot depends on how the Mnd is affecting you.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  10. #10
    Forum Member WendyWooG's Avatar
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    Yes Terry, I think we all progress differently with this. I only had to stop using the chair because I couldn't stand to transfer anymore and there wasn't room to safely hoist me at the top of the stairs. The chair itself had a seat belt and I could still sit fairly safely. It was very worthwhile having it as it gave me an extra 6 months of freedom.

    Wendy

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