My journey started back in July 2016, originally diagnosed as a cricked neck, then a pinched nerve and now potentially something else. After 4 months of repeat visits to my GP I was eventually referred to a neurologist. I had an MRI of brain and neck, the findings in Jan were mild stenosis and an irritated nerve.
Whilst waiting for my follow up appointment other things started to happen, mostly left leg weakness and a little atrophy of the calf. My GP was really concerned and had me seen sooner that the follow up appointment.
The findings were, wasting of both thenar eminences, weakness of left finger and abduction and grip. Mild left lower limb weakness on the hip and knee flexion and knee extension. Reflexes were brisk, right planter response was flexor and left was mute (don't know if it matters but my gp disputes this as my toes all flare up and out), GP also did a finger flick test (Hoffman?) And my thumbs and index finger both go down on both hands. My neurologist hasn't indicated what it can be but has ruled out MS and that my bloods were good.
My gp has given me a slight inkling as it various possibilities and MND was the one that stuck. He mentioned 'split hand' and when I've looked online my hands look the same. Since my appointment 3 weeks ago, I have more atrophy on the calf and keep going over on my left heel. Taken to wearing boots to prevent spraining myself.
I'm off sick from work, they have been non supportive of my appointments and on my last one I got a nasty letter from HR about my absences. I've not taken sick, just 2 appointments, one for ptsd counseling (another story) and my neurology appointment. After OH told me I need to go to both.. go figure!
I have my EMG on April 1St, so not too long too wait but I am honestly scared. I doubt I won't get the results until my next follow up some months away. My body twitches all the time and my ring and middle finger on my left hand won't spread apart and I'm losing general mass on my thighs. (I used to push 150kg, I was very proud of my defined legs)
I'm a single mom of 3, 12 and under and dad is not allowed to be around any of us, I have virtually no support and with things progressing quickly I'm becoming quite worried about what my future holds for me and my children.