We have just come across this forum whilst researching MND. Our dad was diagnosed last week and it has come as a very big shock (as Im sure it does with everyone!)
We are just looking to see what we can do to help, he is still walking but slowly getting worse. He has been tested for everything, the last tests were suspected MS and then MND was the final diagnosis. We have gone through the motions of him being very upset but this week he is trying to be positive. He has done everything through private doctors so far and he is now going to see Dr Richard Orrell for further checks and tests (in a couple of weeks) to make sure the diagnosis is correct (obviously clutching at straws but worth a try!)
I guess we are just in the realm of the unknown, he can still walk but hobbles....how long till he cannot walk? Will he continue to be able to drive? How quickly does deterioration happen?? He is in his mid 50's and I physical guess symptoms have been showing for about a year since 1st falling over. He is struggling to use his arms too but he is seeing a physiotherapist 3/4 times per week which is costing a fortune but it makes him feel better so whatever he has to do I guess!!
This forum has been great to browse through so we thought we would join and hopefully get a lot out of it. My dad isnt one to come on things like this, he isnt technically savvy but we have seeked out local MND meet ups but we will wait to ask him about those until his appointment with Dr Orrell so we shall see how that goes.