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Thread: skiing? (don't give it up too soon)

  1. #1
    Forum Member
    Join Date
    Mar 2017
    East Mids

    Cool skiing? (don't give it up too soon)

    Yes skiing -probably not a common topic on this forum but someone might benefit from this: I had my diagnosis confirmed last August and currently have a dodgy left leg and right arm, along with some speech/swallowing issues but generally not too bad yet. I've always been pretty active and managed to ski a bit in Finland last Dec whilst up there to see Santa with my grand daughter (v. wide gentle pistes). I was in Soll, Austria last week and my weak left leg made skiing impossible, so after several tumbles I had to call it a day. It took me about an hour (with help from friends) to get off the slopes which was very disheartening, and being pig-headed I refused the help of the ski patrols. However, after some googling I found a ski bike training centre at nearby Ellmau. All I can say is BRILLIANT! and QUICK! It took about 30 mins to get the hang of it and I now have an international licence enabling me to do this anywhere (including artificial slopes in the UK). It needs much less leg strength and only moderate arm strength. I now own a lightweight folding ski bike and will be doing this as long as I can. There's loads on YouTube but if you're interested check this out and get googling may not have to say goodbye to the slopes just quite yet. DSUK do some great stuff too .

    I hope this is usegul for someone. Bye for now, I'm off to book a trip to Tignes where it's still snowing

  2. #2
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Hi Angus,

    Welcome to you, sorry you've had to join us.

    That's great to hear. Go & enjoy!

    I was a keen skier before my diagnosis & miss it so much I couldn't take advantage of the adapted ski contraptions, even in the early days.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent
    Hi Angus and welcome.

    I started skiing immediately after diagnosis but we know it better as "spending kids inheritance". But on a serious note I'm pleased you have found a way to continue your passion as I believe we should not give up too easily. I wish I could have found a way to carry on playing golf and whilst I could have used a buggy I would fall over after my backswing.

    Keep searching for snow and soft landings.

    Iím going to do this even if it kills me!

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