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Thread: Hydrotherapy

  1. #1
    Forum Member Pinkelle's Avatar
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    Hydrotherapy

    Hi. I'm due to have a hydrotherapy session next week and wondered if anyone else has tried it. I will be having a physio accompanying me. I am hoping it will help with my really tight and tender calves!

  2. #2
    Forum Member Ellie's Avatar
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    Hi Pink,

    That’s great! Hydrotherapy is fantastic for spasticity. I’ve had lots & lots of hydro, particularly working on legs, shoulders and trunk.

    I use a pool specifically for hydrotherapy, so the water is deliciously warm, at about 35 deg, so the muscles can relax more than regular physio, which is a good starting point!

    If you take antispasmodic meds – which, by the sound of it, you should – take it 2hrs before the session for maximum benefit.

    You’ll probably use noodles and/or other flotation devices.

    Above all… enjoy! I hope you’re getting > 1 session??

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Pinkelle's Avatar
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    Hi ellie the only meds I'm on is quinine and riluzole. I been given funding for three sessions. It's at a private hospital. I will see if it helps and I may be able to get money together for one session a month x

  4. #4
    Forum Member Ellie's Avatar
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    If your calf muscles are very tight, something like Baclofen will reduce the muscle tone.

    Good luck with the sessions, hope the physiotherapist has neurological experience.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
    Forum Member Pinkelle's Avatar
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    I tried Baclofen and they didn't work. The physio I'm having works with a lot of patients with parkinsons so I hope she can help me x

  6. #6
    Forum Member Ellie's Avatar
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    Quote Originally Posted by Pinkelle View Post
    I tried Baclofen and they didn't work.
    I'd suggest trying a higher dose of Baclofen or try Tizanidine instead.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #7
    Forum Member Pinkelle's Avatar
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    Thanks. Have appointment with consultant in may so will discuss then x

  8. #8
    Forum Member Pinkelle's Avatar
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    Had my first session today. It was heaven getting into that lovely warm water. She went easy on me today I think. Will go again in two weeks. X

  9. #9
    Forum Member marieline's Avatar
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    Hello Pinkelle,
    I try to get 2 hours in the pool every week. I allows me to exercise parts of my body i wouldn't be able to otherwise. you can just walk up and down the pool. My pool time (unsupervised) is between 7 and 8 in the morning. Just the effort of getting up at 5.30am is empowering enough. I will say it again pool time should be part and parcel of the management of people with MND.
    best wishes Marie

  10. #10
    Forum Member Pinkelle's Avatar
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    Ooh! Was hoping to feel not so tight today but sadly not! Has anyone got a hot tub and how do you find it,?
    Last edited by Pinkelle; 13th April 2017 at 10:47.

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