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Thread: Wife diagnosed with M.S. and then M.N.D.

  1. #1
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    Wife diagnosed with M.S. and then M.N.D.

    Good evening all, my wife was diagnosed as having MS. in October 2016. This was followed up with MND diagnosis in March 2017. Still finding it hard to come to terms with but our support team have been excellent. Feel as though we have been battered recently with setbacks but have had a good week at last. Wife has very little ability in hands and finding it more and more difficult to communicate waiting for assessment for communication aids.

  2. #2
    Forum Member Terry's Avatar
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    Hi Tom and welcome to the forum;

    Sorry to hear about your wife. I originally thought that I had MS but the specialist said it was more likely to be Parkinson's.

    Does and can your wife use a tablet or a computer?

    Hopefully she will have a team around her and one of them is a "speech therapist". It sounds like you need an urgent appointment with that therapist, if it's a way off, maybe Mnda connect could help speed it along.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Barry52's Avatar
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    Hello Tom and welcome.

    Sorry to hear about your wife's diagnosis. As you say the difficult part is coming to terms with the disease and what lies ahead. You can be assured of support and advice on this forum so please drop in at any time.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  4. #4
    Forum Member Ellie's Avatar
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    Hi Tom and welcome to the forum.

    What a rough time you've both been through with the MS misdiagnosis (not an easy mistake to make) and now your wife's MND diagnosis is showing its ugly self...

    Good to hear that she is well supported.

    I 2nd what Terry said; get a communication aid sorted asap. I know how frustrating not being able to communicate is, and it's best avoided!!
    I lost the use of my hands early on and use eye gaze technology to operate my pc, including text-to-speak, but there are various lower tech solutions also available.

    Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
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    Welcome Tom

    Sorry to hear of your wife's diagnosis. You have found a great place here for support by a group of wonderful people that will provide knowledge, comfort, advice and friendship and much more.

    Wishing you both all the best in the days ahead.

    CCxx
    .

  6. #6
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    Thanks Ellie, technology is being organised but awaiting contact. She was not misdiagnosed, she unfortunately has both conditions, a rarity which is no real comfort though.

  7. #7
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    Thanks Terry awaiting contact with technology people which will then help with wife ability to communicate, Thank you for reply

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