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Thread: Newly diagnosed

  1. #1
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    Newly diagnosed

    Hi, I'm Bern and I was officially diagnosed with MND on May 2nd. As you all know it's overwhelming and you go through every emotion possible. I'm 59 today! I'm retiring in July which was planned. I'm currently still teaching but some days I suffer terribly from fatigue. I'm struggling with the idea of having grab rails etc fitted in the house but I guess everyone must feel like that. The support we've had from our local MND team has been fantastic. My nurse told me about this site. I can see that it provides a lot of good advice. X

  2. #2
    Forum Member Terry's Avatar
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    Hi Bern and welcome to the forum;

    Sorry to hear about your diagnoses. You've summed the emotion bit up and it takes a while to get over it or to it to a bearable level.

    I hope you've had a reasonable birthday today.

    It would be good for you to do a little less work and not get fatigued.

    Please ask any questions.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keeps us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member ccinjersey's Avatar
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    Welcome Bern

    You have found the right place for great support, advice, and friendship by a group of wonderful people.

    Wishing you all the best in the days ahead

    CCxx
    .

  4. #4
    Forum Member WendyWooG's Avatar
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    Hi Bern
    Sorry you have to be here but welcome.

    Wendy

  5. #5
    Forum Member Barry52's Avatar
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    Hi Bern and welcome from me.

    I pleased to hear that you are organised with grab rails as I find they help me move around safely. Enjoy your early retirement.

    Best wishes,
    Barry
    Life is a journey, not a destination.

  6. #6
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    Hi Bern. I understand. Take everything they offer you and remember, an MND is not a death sentence. Its a chronic condition that you can survive a long time with a little luck and a lot of knowledge.

  7. #7
    Forum Member Ellie's Avatar
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    Hi Bern & welcome to the forum.

    Yep, it takes a while to come to terms with the diagnosis, for sure.

    You probably should bump up your calorie intake for this stage of MND, which hopefully will give you more energy.

    We all hate the notion of mobility aids etc. but they do prevent falls and injuries, which can lead to a decline in function, and they also help conserve precious energy.

    Counting down the days to July!!!

    Love Ellie.
    Last edited by Ellie; 19th May 2017 at 16:04.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  8. #8
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    Thank you! X

  9. #9
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    Just finding my way around here! Thank you to you all. It's good to know you're all around. Xx

  10. #10
    Forum Member John14's Avatar
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    Hello Bern and welcome to the Forum,

    I think I know how you must be feeling, don't worry too much about having hand rails fitted they are well worth having and your O/T will advise on where they should be fitted. I remember being advised that a second handrail on the stairs was worth having and if you don't have any others one there will make a lot of difference and is essential for your safety.

    All the best,

    John

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