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Thread: Rch4

  1. #271
    Quote Originally Posted by Puddy View Post
    That is so sad. So much goes towards cancer research and their advertising yet MND is just as devastating.
    Yes the whole MND scene is sad.
    This makes interesting reading.
    https://www.als-new-drug.com/difficulties

    Also the drug has had the highest number of votes ever on ALS Untangled for years.
    http://www.alsuntangled.com/open.php

    Yet it is ignored by the establishment.

    My own experience
    zM (2).png

  2. #272
    Forum Member Lynne K's Avatar
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    Thanks for sharing your info originalthought, and the links. I hope for the rolling out widely of RCH4 very soon so double blind trials need to get a move on. Is it a trial that you have been on or what? Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  3. #273
    Quote Originally Posted by Lynne K View Post
    Thanks for sharing your info originalthought, and the links. I hope for the rolling out widely of RCH4 very soon so double blind trials need to get a move on. Is it a trial that you have been on or what? Lynne
    Lynn, no it is not a clinical trial. A charity supplies rch4 free of charge when they have funds. After malicious posters untruthfully said it is all a scam, their funding dried up and we are worried if we will continue to be able to get it.

  4. #274
    Forum Member Lynne K's Avatar
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    Ok originalthought. I hope that it gets looked into by well qualified scientific researchers very soon. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  5. #275
    Quote Originally Posted by Lynne K View Post
    Ok originalthought. I hope that it gets looked into by well qualified scientific researchers very soon. Lynne
    Lynne the charity are all unpaid doctors and scientists see here

  6. #276
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    Quote Originally Posted by originalthought View Post
    Lynne the charity are all unpaid doctors and scientists see here
    Wondering what they were specialising in? Who is the Pharma company making the drug? All a little too vague for me I'm afraid.

    From the disclaimer "​​Nothing in this web site may be considered to be medical advice." So what is it the website is claiming?

    Need answers.

  7. #277
    Quote Originally Posted by Sportingmac View Post
    Wondering what they were specialising in? Who is the Pharma company making the drug? All a little too vague for me I'm afraid.

    From the disclaimer "​​Nothing in this web site may be considered to be medical advice." So what is it the website is claiming?

    Need answers.
    Sportingmac, you have appeared elsewhere as a nay-sayer. You do not take the drug so nothing for you to be interested in or be afraid of.

    They are an unpaid charity and they make clear that they make no claims whatever.

    There is separate website run by PALS themselves who take RCH4
    http://rch4als.com
    RCH4 has the highest number of votes in the history of ALS Untangled
    http://www.alsuntangled.com/open.php

    From PALS own reports on the Internet
    Attached Images Attached Images

  8. #278
    Forum Member Puddy's Avatar
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    Just a thought, and you may have already tried this, but could we bombard our MP's with this?




    Husband, Nigel, diagnosed with ALS in July 2019. We live in Spain and the medical care is superb. Nigel currently taking Riluzole. Tried acupuncture/Chinese medicine and bee venom (privately), but not helpful.

  9. #279
    Forum Member Ellie's Avatar
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    Quote Originally Posted by originalthought View Post
    You do not take the drug so nothing for you to be interested in or be afraid of.
    Originalthought,

    You surely must realise how vile it is for you and your ilk to taunt valued Forum members with a product which is simply not available.

    You, and others like you, join this Forum simply to tell us all how wonderful this elusive product is, knowing full well that not one person reading your effusive posts will be able to source the product - you are being beyond cruel.

    I urge you, and the others like you, who join the Forum only to post in this thread, to take a good look at your conscience before you write one more word on this topic. You may as well be extoling the virtues of unicorn milk to us and it is not acceptable to treat us with such contempt.

    Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #280
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    This drug has been sketchy from the beginning of this thread right up until now in my opinion.

    More to the point the so called 'Charity'. Who are these doctors, and scientists working for free on a drug they make no claims will work, but are seeking money to continue to fund their work ????

    Why all this cloak and dagger stuff from the Charity??? If they have created a drug that those taking it claim is actually working why have these brilliant doctors, and scientists not come forward ?? They have done something no else has been able to do. Why are they hiding in the shadows ???

    Its also very sketchy to me random forum members suddenly join this forum only to promote this drug.

    ...And why do the random forum members that suddenly pop up on this thread to rave about this drug criticize, and question the existing forum members here for questioning them ???

    Why has the Charity and drug been labeled a scam ???

    Just my observation, opinion, and confusion of this drug.

    Wishing all those taking RCH4 much success with it, maybe the rest of the ALS/MND community will have access to it with real proven, and positive results

    CCxx
    .

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