Hello everyone
I've dipped in and out of this forum for quite a few years now. Mark and I have been so lucky that his progression has been very slow.
Since March his swallow then speech has disappeared so quickly we are reeling.
Lots of meds then finally Botox last week. Is there anyone who can give us any advice for where we are now? Mark has absolutely had enough and for me to constantly see that is soul destroying. We've coped with so much but now suddenly it's unbearable