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Thread: Riluzole

  1. #11
    Forum Member Ellie's Avatar
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    Hi Andy,

    Each drug has an SPC (Summary of Product Characteristics) as well as the PIL (Patient Information Leaflet)

    The SPC, found online, is more informative, imo, and gives info on Absorption, amongst other data. It's here you'll find info that fat affects both the rate and extent of absorption of Riluzole.

    It's up to you how you take the meds; I don't take it bang on 12-hourly because it doesn't suit.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  2. #12
    Forum Member nunhead_man's Avatar
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    Thanks Ellie

    Quote Originally Posted by Ellie View Post
    The SPC, found online, is more informative, imo
    Do you have the URL please or the meaning of if any of "SPC" ?

  3. #13
    Forum Member Ellie's Avatar
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    Just this once next time I'll say Google it...

    I gave the meaning of SPC above.

    http://www.mhra.gov.uk/home/groups/s...4003635337.pdf

    This is the Glentek one, it's identical to the original Rilutek SPC.

    Ellie x.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  4. #14
    Forum Member nunhead_man's Avatar
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    Thank you

    Now have the mechanism of working in my head

    And just say Google?

    Sorry if I'm being grumpy but to get to http://www.mhra.gov.uk/home/groups/s...4003635337.pdf I preumably need lots of poking around or a search term of "MHRA+Rilutek+Summary of Product Characteristics+ ???

    Best

    Andy

  5. #15
    Forum Member Ellie's Avatar
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    Morning Andy,

    Because I use eyegaze to type and control my PC, I'm Queen of Shortcuts, so I searched "Glentek Riluzole SPC".

    I avoid using long winded prose to conserve my energy

    Ellie x.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  6. #16
    Forum Member nunhead_man's Avatar
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    Smile

    Hi Ellie



    Quote Originally Posted by Ellie View Post
    ]Queen of Shortcuts,,,,,I avoid using long winded prose to conserve my energy Ellie x.
    And following a winge I now have my next month of drugs from M A Holder - Sun Pharma - hope these taste better!

    bw

    Andy

  7. #17
    I've found this thread very helpful.

    I've been taking Riluzole (Glenteck) for three months, since diagnosis, without apparent side effects. But once or twice I've experienced tingling in my tongue and was worried that this may indicate progression of the disease - apparently not!

    Have we resolved this issue of whether one should take it with food or avoid mealtimes?

    Best

    Doug

  8. #18
    Forum Member Ellie's Avatar
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    Hi Doug,

    Riluzole is best taken on an empty or near-empty stomach. This is because fat hinders the absorption of the drug by the body.

    Ellie x.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  9. #19
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    Thank you Ellie.
    I followed your suggested link and found it very interesting.

  10. #20
    Forum Member Terry's Avatar
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    Hi Doug;

    Better to take them twelve hour apart and hour before or two hours after food if possible but you have to set the clock. Also I would be tempted to change the brand if it's melting a bit in your mouth.

    Love Terry

    Love Terry
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