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Thread: Power wheelchair

  1. #31
    Forum Member Ellie's Avatar
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    Ah yes Lynne - a crystal ball would be very useful indeed!!

    Hopefully your OT will provide you with a lightweight transit chair (with a decent cushion) well in advance of your holiday. It can stay, folded up, in a cupboard/under a bed until you need it.

    You're right to start the ball rolling on a powerchair, given the length of time it takes to actually get one. Again, you don't have to use it all the time, but it'll be there for you and your safety.

    If you need extra help to get in and out of cars, there are turntables which make it easier. I've visions of you freewheeling down that steep hill at midnight with your friends chasing after you

    Ellie x.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  2. #32
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    Hi Ellie. I told my husband that I wont be using any kind of chair on the hill. It'd be suicide. Just had my daughter chuckling about what you said x

  3. #33
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    Hi everyone, I'm looking for some advice/recommendations please.
    I've got my mobility assessment tomorrow for the powered wheelchair. I'm told there are two options, one is an Invacare TDX, the other salsa mini 88.
    Ellie, Pink and Bern, I think you all have the Salsa.
    Anyone got the Invacare?
    Any particular features I should be looking out for?
    I'm concerned about getting up from the chair independently. Has anyone got an adaptation to help with this?
    I am so not looking forward to tomorrow. I know I need it, just have to stay strong and deal with it.
    Apologies if this has already been discussed. If so please just point me in the right direction!
    Many thanks and best wishes to all x

  4. #34
    Forum Member Ellie's Avatar
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    I've the Invacare chair Helen - it's very reliable. As you said, a few have the Salsa.

    Both chairs have specs developed in conjunction with the MNDA to give the Powered Neuro Chair. However, as you can see from this thread, Salsa don't always provide the full spec they're meant to

    So, stress you are to get the MNDA Spec chair.

    Both Invacare and Salsa have seat lift functions at extra cost (Pink scored well to get it included on her chair, so maybe you will too) but I don't know if that'd help you in any way? It's something to discuss at the assessment.

    Important are: headrest, seat cushion, back cushion, padded armrests, footrest position, tilt function on seat, position of drive control & shape of joystick, to name a few!

    Good luck,
    Ellie x.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  5. #35
    Forum Member Terry's Avatar
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    Hi Helen;

    I have a standing wheelchair which is great for me as I can get straight from that to my walker myself. Social services are very unlikely to provide that.

    If your legs and arms work like mine sort of do, I can get in and out of a standard wheelchair by having a good bar to grip at the right height.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  6. #36
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    Thank you Ellie and Terry for your comments, you've both been very helpful.
    It's not a great week for me, Mcmillan nurse visited today, mobility assessment tomorrow, MND clinic at hospital, followed by OT visit to discuss wet room.
    Going to treat myself to something nice on Thursday , might have to do some serious shopping!!

  7. #37
    Forum Member Ellie's Avatar
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    Nothing slaps you harder than the first visit from the Palliative Care Nurse Specialist, does it!!!

    I know how tough it is Helen to be bombarded with these services, with their none-too-subtle bits & bobs, forms and assessments. The positive is that you're not being left to your own devices and you'll be grateful for them some day...

    It's a glorious day here - I've been out in the garden admiring the daffs So, a good time for you to shop the SS18 Collection

    Love Ellie.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  8. #38
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    Hi Ellie
    It's so good to hear from someone who has been through this process and can understand how it feels. Thank you Ellie , you always put a positive spin on things.
    Had my assessment and guess what? I passed the driving test and was told I'm a great driver!
    I've opted for the Invacare as I can have touchscreen controls. Found the buttons tricky.
    They are going to contact MNDA and request help for a seat that raises to help me get up.
    I went through the checklist and was told I can have what I want!!
    Coffee cup holder, heated seat, wi-fi...... any other suggestions please?!!

    Best wishes Helen x
    ,

  9. #39
    Forum Member Terry's Avatar
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    Hi Helen,

    Seat riser is good for reaching up higher and reaching things and to be more visible in busy places. It won't help you stand up or get out of the chair.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  10. #40
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    I understand Terry. It might make it easier for my hubby to help me up.
    I've been looking at the standing wheelchair today. Had no idea they existed.
    Where would we be without this forum and all you wonderful people!

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