Page 1 of 4 123 ... LastLast
Results 1 to 10 of 36

Thread: New to the forum

  1. #1
    Forum Member
    Join Date
    Nov 2017
    Posts
    24

    New to the forum

    Hello we are the sons and daughter of a man just diagnosed. It has progressed very quickly and he struggles to walk now and has lost so much power. We are new ro all of this so apologies if we ask inane questions at times.

  2. #2
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    2,073
    Hi to you all and sorry about your dad's diagnosis.

    As the saying goes, there's no such thing as a stupid question...​ so, ask away!

    None of us here knew anything about MND before being forced to learn about it through a diagnosis.

    Love Ellie.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  3. #3
    Forum Member
    Join Date
    May 2017
    Location
    Jarrow, Tyne and Wear
    Posts
    359
    Hi to the sons and daughter!
    Welcome to the forum where there is always someone to answer questions and give good advice.
    I know it's somewhere you would rather not be.
    I was diagnosed a few months ago and our sons and daughter knew nothing about MND. Neither did my husband or I!
    Please ask any questions you want!
    Thinking of your family,
    Bern x
    Last edited by Bern; 3rd November 2017 at 21:11.

  4. #4
    Forum Member
    Join Date
    Sep 2016
    Location
    Cambridge UK
    Posts
    107
    Hello sons and daughters! Welcome to this wonderful forum where you will get loads of support and advice from people who really know about this subject. I often ask for guidance so don't be shy and ask away!
    Wishing you all the best.
    Fru x

  5. #5
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    1,681
    Hi Coco and welcome.

    You will find support and advice here.

    Best wishes
    Barry
    Life is a journey, not a destination.

  6. #6
    Forum Member
    Join Date
    Nov 2017
    Posts
    24
    Thanks to all for the welcome. The internet is a scary place and weve seen so much good in viewing your posts. Thankyou. Dads scared of the tummy button, what is life without one? Balance between what we want and hope for him against the power he should have to manage his life...getting him an ipad for christmas- with the app for speaking.. just realised this post is a jumble of questions!!

  7. #7
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    6,424
    Hi Coco and welcome to the forum,

    As others have said, please feel free to ask any questions or share things with us.

    Not quite sure what you mean by tummy button but I guess you are referring to a feeding tube. Many of us have them including me.

    He should have a speech therapist and it would be good to involve them in I PAD purchase and talking apps. Also the Mnda have a specialist in the subject.

    I guess that your dad's speech is affected because not everyone has that trouble.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  8. #8
    Forum Member Streetwise's Avatar
    Join Date
    Dec 2016
    Location
    Sunderland
    Posts
    191
    So sorry

  9. #9
    Forum Member Streetwise's Avatar
    Join Date
    Dec 2016
    Location
    Sunderland
    Posts
    191
    You're just stressed

  10. #10
    Forum Member Streetwise's Avatar
    Join Date
    Dec 2016
    Location
    Sunderland
    Posts
    191
    I don't even have motor neurone disease but I ask questions

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •