Page 1 of 3 123 LastLast
Results 1 to 10 of 23

Thread: Speech

  1. #1
    Forum Member
    Join Date
    Nov 2017
    Posts
    155

    Speech

    Is slurred/losing ability to speak occasionally a really bad sign, diagnosis was sept 2017 also weakness to left leg n hand

  2. #2
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    8,009
    Hi Jaxx;

    It is not a good sign but many of us did have early speech problems. It would be good to call the speech therapist to get advice and maybe a speaking machine.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member
    Join Date
    Nov 2017
    Posts
    155
    Thank you she has an appointment with the speech therapist soon that is bringing equipment to voice bank as she has children 8 and 7 months.

  4. #4
    Forum Member
    Join Date
    Aug 2017
    Posts
    51
    Hello Jaxx, just thought this may help you. I was diagnosed April 2017. My speech is very slow & slurred, I also have weakness in my left leg & left hand. I recently saw my specialist & he was very pleased that my symptoms were not very much worse than the previous consultation. I asked if he thought I had a slower version of MND & he said he thought I did. I thought by telling you this it might stop you worrying so much. I sincerely hope this helps you.
    Regards Maeve

  5. #5
    Forum Member
    Join Date
    Nov 2017
    Posts
    155
    Thank you so much it sounds like you have similar symptoms to my daughter that has made me feel better although I worry and cry most of the time.

  6. #6
    Forum Member
    Join Date
    Aug 2017
    Posts
    51
    Hi Jaxx,yes it does sound very similar to mine, that’s exactly what I thought when I read your post. Of course you cry a lot, I guess we all do. It’s a terrible shock & not an easy thing to accept. I must admit that my husband & I & our two grown up sons cried a lot immediately after the diagnosis. Since then , things have settled down a lot but we still have our moments,
    I am sure you will find this website a great help to you, as there is always someone on here that has experienced whatever you are going through. If you don’t see what you are looking for, all you have to do is ask. Thinking of you. Maeve x

  7. #7
    Forum Member
    Join Date
    Nov 2017
    Posts
    155
    Hello Maeve thank you for your reply, do you ever find you cannot speak at all at times, when this happens to my daughter she just bursts into tears which sets me off too, sorry to keep questioning x

  8. #8
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    8,009
    Hi Jaxx;

    If she tries to speak a lot slower and sometimes split the words up, it might be understood better and easier to say.

    I have to think of what words I can pronounce and then try to say them but even after four years, I still don't know what I can or can't say. I still think that I can sing and say anything. Crazy.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #9
    Forum Member
    Join Date
    Aug 2017
    Posts
    51
    Hi Jaxx
    yes there are times when I am unable to get the words out at all & it’s frustrating & very upsetting, it’s not surprising you both cry, it’s a huge trauma & you don’t know what is going on. As Terry says, he thinks he can still sing & say anything.
    In my head I still think I am going to speak normally & it comes out slurred & slow. Please don’t worry about asking any of us anything, we are all happy to help you & we all understand what you are going through.
    Maeve

  10. #10
    Forum Member
    Join Date
    Nov 2017
    Posts
    155
    Thank you so much, I keep hoping to wake up! X

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •